Every September, people living with sickle cell disease, their caregivers, advocates, healthcare providers, and others come together to bring awareness to the disease and dispel the myths and stigmas surrounding it. The month also brings attention to the ongoing need for research, better care practices, new treatments, and an eventual cure.
Facts about sickle cell disease:
- Most common inherited blood disorder in U.S.
- Affects approximately 100,000 Americans.
- 1 out of every 365 Black or African American babies are born with sickle cell disease.
- 1 out of every 16,300 Hispanic-American babies are born with sickle cell disease.
- About 1 in 13 Black or African American babies are born with sickle cell trait.
Learn more and join the Blood Diseases & Disorders Education Program in bringing greater awareness to sickle cell disease by using these fact sheets, articles, social media resources, and more.
Find tips for managing and living with sickle cell disease, as well as information about treatments that you can discuss with your doctors.
Honoring Today’s Faces of Sickle Cell Disease
Read inspiring stories of people living with sickle cell disease, their loved ones, clinicians, and the researchers whose work offers hope for a cure.
Share these articles on your blog, website or e-newsletters and reach out to your local media and encourage them to share this article to help raise awareness.
Other Sickle Cell Disease Awareness Resources
- Understanding Sickle Cell Disease - Learn more about Sickle Cell Disease, including symptoms, treatments, and lifestyle tips.
- Cure Sickle Cell Initiative - See how NHLBI-led research is paving the way to a cure for Sickle Cell Disease.
Blood Health Network - Find additional resources from Blood Health Network partners.