Sickle cell disease (SCD) is the most common inherited blood disorder in the United States, and affects millions of people worldwide.
Every September, people living with SCD, their caregivers, advocates, healthcare providers, and others come together to bring awareness to the disease and dispel the myths and stigmas surrounding it. The month also brings attention to the ongoing need for research, better care practices, new treatments, and an eventual cure. Read the President’s Proclamation.
SCD Facts & Statistics:
- Affects ~100,000 Americans.
- 1 out of every 365 Black or African American births
- 1 out of every 16,300 Hispanic-American births
- About 1 in 13 Black or African American babies born with sickle cell trait
Join NHLBI as we observe Sickle Cell Awareness Month 2021 with the overarching theme “Advancing Sickle Cell Disease Research.”
Each week we’ll be highlighting different areas NHLBI-supported research.
- Week 1: Where We Started: History of SCD Research
- Week 2: Where We Are Today: Developments in Basic, Clinical, and Translational SCD Research
- Week 3: Where We Are Today: NHLBI’s Global Efforts to Address SCD
- Week 4: Where We Are Today: Role of Clinical Research and Clinical Trials in Advancing SCD Treatment and Care
- Week 5: Where We’re Headed: NHLBI’s Future Research Opportunities in SCD
Use the resources below to help you raise awareness about SCD and share how research has advanced.
Find tips for managing and living with sickle cell disease, as well as information about treatments that you can discuss with your doctors.
Social Media Resources
Find graphics and resources to share on social media to help raise awareness about sickle cell disease. Tag us on Twitter @BloodHealthEd so we can like your post.
Honoring Today’s Faces of Sickle Cell Disease
Read inspiring stories of people who are living with SCD, such as Clevetta Drew, NIH gene therapy trial participant.
Share this article in your publications, blog, or website and reach out to your local media and encourage them to share this article to help raise awareness about SCD.