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Sickle Cell Disease: Research, Programs, and Progress

Sickle cell disease affects about 100,000 Americans, many of whom are African American, and over 20 million people worldwide.
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NIH launches new collaboration to develop gene-based cures for sickle cell dise…

The National Institutes of Health plans to invest at least $100 million over the next four years with the goal to cure sickle cell and HIV.
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Cure Sickle Cell Initiative

Learn about the NHLBI-led collaborative research and how it is paving the way for a cure for all patients who have sickle cell disease.
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Enroll in NIH Sickle Cell Study From 60 Minutes

Learn more and enroll in the study.

Publications and Resources

The NHLBI offers many sickle cell disease resources, including publications and videos, to help patients, their families, and health professionals. Explore these resources to learn more about important topics, such as tips for healthy living, treatments, and managing pain. Some publications are also available in Spanish.
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Participate in a Clinical Trial

The NHLBI leads or sponsors many studies on sickle cell disease, advancing our knowledge and treatment of the condition—and you can help. Learn more about open and enrolling NHLBI clinical trials that are related to sickle cell disease and see if you or someone you know is eligible to participate in one of them.
Learn more about NHLBI clinical trials on sickle cell disease

Our Partners

The NHLBI recognizes the importance of partnering with communities and organizations that are invested in advancing research, education, and outreach to fully realize the dream of a generation free of sickle cell disease.
Learn more about Our Partners
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Tools for Health Professionals

Find the latest report on sickle cell disease treatment and care, as well as patient education resources in English and Spanish, to help your patients learn more about the disease.
View resources for health professionals.
Related Initiatives
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Cure Sickle Cell Initiative

Learn about this NHLBI-led collaborative research effort that will accelerate the development of gene therapies to cure sickle cell disease.
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Blood Disorders and Blood Safety

The NHLBI is a global leader in blood-related research. Learn about NHLBI-supported research on blood disorders, including sickle cell disease, blood safety, transfusion medicine, and more.

Get in Touch

Contact us with questions or to order resources on sickle cell disease from the NHLBI. You can also stay up to date on the latest news, events, and information from the NHLBI with our email alerts.
Phone
1-877-NHLBI4U (1-877-645-2448)

Open Monday through Friday, 8:30 a.m. to 5 p.m. Eastern time (closed on Federal holidays).

For access to free Telecommunications Relay Services (TRS), dial 7-1-1 on your telephone.

Postal Mail

NHLBI Center for Health Information
P.O. Box 30105
Bethesda, MD 20824-0105
United States