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Supporting sickle cell disease research across the nation

Discover how our Division of Blood Diseases and Resources supports sickle cell disease research and clinical research centers nationwide.
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What is sickle cell disease?

Find information and resources about sickle cell disease including how it is caused, signs and symptoms, diagnosis and management.
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NHLBI statement on sickle cell disease genetic therapy trial

Find out why the NHLBI decided to pause the Pilot and Feasibility Study of Hematopoietic Stem Cell Gene Transfer for Sickle Cell Disease.

Tools and Materials

The NHLBI offers many sickle cell disease resources, including publications and videos, to help patients, their families, and health professionals. Explore these resources to learn more about important topics, such as tips for healthy living, treatments, and managing pain. Some publications are also available in Spanish.
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Today’s Faces of Sickle Cell Disease

Read inspiring stories of people who have sickle cell disease, such as Natalie Jean-Baptiste, who is also a COVID-19 survivor.
Read these inspiring stories
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Leading the Cure Sickle Cell Initiative

See how NHLBI-led research is paving the way to a cure for sickle cell disease.
Cure Sickle Cell Initiative
Related Initiatives
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Blood Diseases and Disorders Education Program

The Blood Diseases and Disorders Education Program is a national health education program that aims to bring greater visibility to blood diseases and disorders like anemia, sickle cell disease and others, their diagnosis, treatment and management, and blood safety by translating research for patients and professionals.
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Blood Disorders and Blood Safety

The NHLBI is a global leader in blood-related research. Learn about NHLBI-supported research on blood disorders, including sickle cell disease, blood safety, transfusion medicine, and more.
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Joining an NHLBI Sickle Cell Clinical Trial

Find out if you or someone you love is eligible to participate in an NHLBI clinical trial for sickle cell disease.
SCD Research

Sickle Cell Research at the NHLBI

Learn about ongoing research from NHLBI labs in the Sickle Cell Branch.
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Funding Opportunities for Sickle Cell Disease Research

Learn more about active NHLBI-funding opportunity announcements for sickle cell disease.
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Advancing Sickle Cell Treatments from Lab to Clinical Practice

Read how the NHLBI Implementation Science Branch helps translate genomic research and therapies into real-world practices.

Get in Touch

Contact us with questions or to order NHLBI resources on sickle cell disease. To stay up to date on the latest news, events, and information from the NHLBI, subscribe to receive our email alerts.
Phone
1-877-NHLBI4U (1-877-645-2448)

Open Monday through Friday, 8:30 a.m. to 5:00 p.m. Eastern time (closed on Federal holidays).

For access to free Telecommunications Relay Services (TRS), dial 7-1-1 on your telephone.

Postal Mail

NHLBI Center for Health Information
P.O. Box 30105
Bethesda, MD 20824-0105
United States