Today’s Faces of Sickle Cell Disease
In September 2017 the NHLBI launched Today’s Faces of Sickle Cell Disease (SCD). During SCD Awareness Month, each September, we feature real stories of strength and perseverance of people living with SCD, their loved ones, clinicians, and the researchers whose work offers hope for a cure.
Click below to read their stories. Don't forget to check back often as we add more!
Lawyer, sickle cell patient, COVID-19 survivor Her story: Natalie Jean-Baptiste, 42, has lived with sickle cell disease her entire life and has forged a...
Blood researcher, branch chief, Division of Blood Diseases and Resources, National Heart, Lung, and Blood Institute Her Story: Traci Mondoro, Ph.D., serves as...
Imagine having sharp, tingling pain running throughout the tiny blood vessels in your bones. What if you couldn’t stop it? What if prescriptions, such as...
Director of WBPR Agency, and stem cell transplant patient Her story: Wunmi Bakare was 18 months old when her pediatrician, Dorothy Esangbedo, M.D., diagnosed...
Research pioneer, patient advocate, broadcast professional His story: Rodrick Murray was 3 months old when he was diagnosed with sickle cell disease (SCD). This...
Read English Version Representante de pacientes, voluntaria para la Asociación de Células Falciformes de Texas de la Fundación Marc Thomas Su historia: Mercy...
Researcher at University of Lagos, Nigeria, and NIH postdoctoral fellow His story: Kolapo Oyebola, Ph.D., was born in Nigeria, where half the cases of sickle...
Hematologist, Sickle Cell Disease Researcher, University of Abuja, Abuja, Nigeria Her Story: Ten years ago, Obiageli Nnodu, M.D., had an established career as a...
Sickle cell disease researcher, officer with the U.S. Public Health Service Her story: Iman Martin is a Genetic Epidemiologist and Program Director in the...
Sickle cell patient, parent, software professional, volunteer His story: Michael Loiacono, 32, is quick to admit that he is not the typical person with sickle...
Survivor, father, volunteer for Sickle Cell Disease Association of America -Mobile Chapter, Inc. His story: Lynndrick Holmes, 29, was diagnosed with sickle cell...
Cassandra Trimnell, patient advocate, Sickle Cell 101 Executive Director Her story: When Cassandra Trimnell was born in 1987, she was the first child diagnosed...