Today’s Faces of Sickle Cell Disease

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In September 2017 the NHLBI  launched Today’s Faces of Sickle Cell Disease (SCD). During SCD Awareness Month, each September, we feature real stories of strength and perseverance of people living with SCD, their loved ones, clinicians, and the researchers whose work offers hope for a cure.

Click below to read their stories. Don't forget to check back often as we add more!

Picture of Sickle Cell advocate Mercy Mendoza
Read English Version Representante de pacientes, voluntaria para la Asociación de Células Falciformes de Texas de la Fundación Marc Thomas Su historia: Mercy...
Picture of Sickle Cell advocate Kolapo Oyebola
Researcher at University of Lagos, Nigeria, and NIH postdoctoral fellow His story: Kolapo Oyebola, Ph.D., was born in Nigeria, where half the cases of sickle...
Picture of Sickle Cell advocate Obiageli Nnodu
Hematologist, Sickle Cell Disease Researcher, University of Abuja, Abuja, Nigeria Her Story: Ten years ago, Obiageli Nnodu, M.D., had an established career as a...
Picture of Sickle Cell advocate Iman Martin
Sickle cell disease researcher, officer with the U.S. Public Health Service Her story: Iman Martin is a Genetic Epidemiologist and Program Director in the...
Picture of Sickle Cell advocate Michael Loiacono
Sickle cell patient, parent, software professional, volunteer His story: Michael Loiacono, 32, is quick to admit that he is not the typical person with sickle...
Picture of Sickle Cell advocated Lynndrick
Survivor, father, volunteer for Sickle Cell Disease Association of America -Mobile Chapter, Inc. His story: Lynndrick Holmes, 29, was diagnosed with sickle cell...
Picture of Sickle Cell advocate Cassandra Trimnell
Cassandra Trimnell, patient advocate, Sickle Cell 101 Executive Director Her story: When Cassandra Trimnell was born in 1987, she was the first child diagnosed...
Picture of Sickle Cell advocate Adrienne Shapiro
Adrienne Shapiro, patient advocate, co-founder of the Axis Advocacy SCD Her story: L ike the three previous generations of mothers in her family, Adrienne...
Picture of Sickle Cell advocate Beverley Francis-Gibson
Beverley Francis-Gibson, President & CEO of the Sickle Cell Disease Association of America (SCDAA) Her story: Beverley Francis-Gibson knows about the pain of...
Picture of Sickle Cell advocate Mercy Mendoza
Patient advocate, camp counselor, volunteer for Sickle Cell Association of Texas Marc Thomas Foundation Her story: Mercy Mendoza was born in Honduras, and for...
Portrait of Linda Wade
Health care educator, patient advocate, minister, president and co-founder of the Sickle Cell Association of Texas Marc Thomas Foundation Her story: In 1997,...
Picture of Wanda Whitten-Shurney speaking at conference
Pediatrician, advocate, CEO and medical director for the Sickle Cell Disease Association of America (Michigan chapter) Her story: Wanda Whitten-Shurney has a...