New parents who have cystic fibrosis say it is important to be prepared and organized so you can manage the demands of parenthood and your own cystic fibrosis care. Your partner, family and friends, and community may be sources of support to help care for your child and keep your treatment on track. Some new parents even say that their children learn to help with cystic fibrosis treatments.

Health Disparities in Cystic Fibrosis

Having a low income is linked with worse lung function, higher death rates, and poorer nutritional status for people with cystic fibrosis. This is true even when comparing groups that have the same number of healthcare visits and take long-term prescription medicines. Also, people of color are more likely to be diagnosed later or not diagnosed at all, because many assume that cystic fibrosis affects only white people.