Description
Agenda
10:00am-10:15am: Welcome and General Introductions:
Marsha Treadwell J, PhD, University of California, San Francisco, CA, SCDAC Chair
Julie Panepinto, MD, MSPH, Director, DBDR, NHLBI, SCDAC Executive Secretary
Traci Mondoro, PhD, Chief, Translational Blood Sciences and Resource Branch, NHLBI
Juan Salomon, MS, PMP, Cure Sickle Cell Initiative Coordinator, NHLBI
Idalia Yabe, PhD, Program Officer, NHLBI
10:15am-11:15am: NHLBI SCD Program Updates
- 10:15-10:30am NHLBI Clinical Trial mechanisms
Speaker: Andrei Kindzelski, MD, PhD - 10:30-10:45am Overview of Sickle Cell Programs including Updates on the Portfolio
Speaker: Traci Mondoro, PhD - 10:45-11:15am Discussion
11:15am-11:25am: Break
11:25-1:00pm: Leveraging Networks to Conduct Successful Clinical Trials in Sickle Cell Disease:
- 11:25-11:30am: Introduction to guest speakers from networks
Traci Mondoro, PhD - 11:30am-11:45pm: PECARN
Speaker: Andrei Kindzelski, MD, PhD - 11:45pm-12:00pm: NICHD neonatal network
Speaker: Nahida Chakhtoura, MD (or designee) - 12:00pm-12:15pm: BMT Clinical Trials Network
Speaker: Nancy DiFronzo, PhD - 12:15-1:00pm: Q&A
1:00pm-1:30pm: Lunch Break
1:30pm-2:50pm: General Discussion & Committee Recommendations