Bethesda, MD
Description
The National Heart, Lung, and Blood Institute (NHLBI) convened a Working Group meeting on January 13, 2015, in Bethesda, MD, to explore issues related to data integration within the congenital heart disease (CHD) research, clinical, and quality improvement communities. The goals of the Working Group were to develop a vision for an integrated data network for CHD research and identify the critical elements for achieving that vision (e.g. data standardization, governance, integration and storage methodologies) and potential barriers. These goals support NHLBI Strategic Plan Goals 1, 2, and 3. The Working Group consisted of experts in pediatric and adult cardiology, pediatric cardiothoracic surgery, epidemiology, informatics, and statistics.