Biography

Julie Panepinto is the Acting Director of the Division of Blood Diseases and Resources (DBDR) at the National Heart, Lung, and Blood Institute of the National Institutes of Health.

Prior to joining the NHLBI in June, 2021, as the Deputy Director of DBDR, Dr. Panepinto was a tenured Professor of Pediatrics, Hematology, Vice Chair of Value in Pediatrics, and the Director of the Center for Clinical Effectiveness Research of the Children’s Research Institute at the Medical College of Wisconsin and Children’s Wisconsin. As a clinician researcher with a background in public health, Dr. Panepinto focused her academic career on understanding and improving the health outcomes of patients and families with chronic disease. Her research focused on integrating the perspective of the patient and family in health care through the use of patient reported outcomes (PROs) and understanding systems of care and acute care utilization for those individuals living with sickle cell disease.

Dr. Panepinto completed her fellowship in Pediatric Hematology/Oncology/Bone Marrow Transplant at the University of Colorado Health Sciences in Denver, Colorado, where she also earned a Master’s of Science in Public Health. She served as a past member on the NHLBI Data and Safety Monitoring Board (DSMB) for the Sickle Cell Disease Clinical Research Network (2006-2010), the NHLBI’s Sickle Cell Disease Advisory Committee from 2016-2019, and the Advisory Council for the NHLBI from 2020-2021. Dr. Panepinto was active in training researchers and served as the mentor for mentees’ NHLBI funded K23 career development awards and as the co-director of the American Society of Hematology’s Clinical Research Training Institute from 2011-2013. Dr. Panepinto is a past Chair of the Guideline Oversight Subcommittee of the American Society of Hematology and former associate editor for the Blood Advances journal. Dr. Panepinto is a member of AOA and a past Hedwig van Ameringen Executive Leadership in Academic Medicine (ELAM) Fellow.