The GenTAC Registry was established in 2006 to collect information from eligible patients with genetic conditions that predispose them for thoracic aortic aneurysms to assist physicians and researchers in understanding the link between genes, aortic aneurysms, and heart disease. The Registry includes de-identified medical data, clinical images, and biological samples of about 3,700 patients and is available for research at no cost to qualified investigators worldwide. The GenTAC Registry concluded in 2016. Several new registries formed to continue longitudinal data collection on GenTAC cohort and to enroll additional patients. Information about these registries is available here.
If you wish to use GenTAC data, images or biological samples, apply here via the BioLINCC.