Today’s Faces of Sickle Cell Disease

Honoring Today's Faces of Sickle Cell Disease. The future of sickle cell disease research is now. Learn about the people behind the progress.

September is Sickle Cell Awareness Month. Throughout the month, the NHLBI will share real stories of strength and perseverance. The stories will highlight people living with sickle cell disease, their loved ones, clinicians, and the researchers whose work offers hope for a cure. Read their stories below.

Headshott of Natalie Jean-Baptiste
Lawyer, sickle cell patient, COVID-19 survivor Her story: Natalie Jean-Baptiste, 42, has lived with sickle cell disease her entire life and has forged a...
Traci Mondoro headshot
Blood researcher, branch chief, Division of Blood Diseases and Resources, National Heart, Lung, and Blood Institute Her Story: Traci Mondoro, Ph.D., serves as...
Headshot of Shirlianna wearing a black shirt, smiling at camera
Imagine having sharp, tingling pain running throughout the tiny blood vessels in your bones. What if you couldn’t stop it? What if prescriptions, such as...
Picture of Rodrick Murray wearing sunglasses and a leather jacket
Research pioneer, patient advocate, broadcast professional His story: Rodrick Murray was 3 months old when he was diagnosed with sickle cell disease (SCD). This...
Picture of Sickle Cell advocate Mercy Mendoza
Read English Version Representante de pacientes, voluntaria para la Asociación de Células Falciformes de Texas de la Fundación Marc Thomas Su historia: Mercy...
Picture of Sickle Cell advocate Kolapo Oyebola
Researcher at University of Lagos, Nigeria, and NIH postdoctoral fellow His story: Kolapo Oyebola, Ph.D., was born in Nigeria, where half the cases of sickle...
Picture of Sickle Cell advocate Obiageli Nnodu
Hematologist, Sickle Cell Disease Researcher, University of Abuja, Abuja, Nigeria Her Story: Ten years ago, Obiageli Nnodu, M.D., had an established career as a...
Picture of Sickle Cell advocate Iman Martin
Sickle cell disease researcher, officer with the U.S. Public Health Service Her story: Iman Martin is a Genetic Epidemiologist and Program Director in the...
Picture of Sickle Cell advocate Michael Loiacono
Sickle cell patient, parent, software professional, volunteer His story: Michael Loiacono, 32, is quick to admit that he is not the typical person with sickle...
Picture of Sickle Cell advocated Lynndrick
Survivor, father, volunteer for Sickle Cell Disease Association of America -Mobile Chapter, Inc. His story: Lynndrick Holmes, 29, was diagnosed with sickle cell...
Picture of Sickle Cell advocate Cassandra Trimnell
Cassandra Trimnell, patient advocate, Sickle Cell 101 Executive Director Her story: When Cassandra Trimnell was born in 1987, she was the first child diagnosed...
Picture of Sickle Cell advocate Adrienne Shapiro
Adrienne Shapiro, patient advocate, co-founder of the Axis Advocacy SCD Her story: Like the three previous generations of mothers in her family, Adrienne...