If you are diagnosed with a bleeding disorder, it is important that you follow your treatment plan, receive routine care, maintain a healthy lifestyle, and learn how to lower your risk of complications. Know what steps you need to take if you have a child with a bleeding disorder. Women with bleeding disorders have unique needs, especially during pregnancy.
How often you see your doctor will depend on the severity of your bleeding disorder, your symptoms, and which treatments you are using. Even if you do not have symptoms and are not undergoing a treatment, you should see your doctor for ongoing care.
Return to Treatment to review treatment options.
After starting treatment, your doctor will check to make sure it is working. This may include blood tests right after treatment, and then regularly to see whether there is a change in the levels of clotting factors or antibodies within your blood.
Replacement therapy can cause major complications, which can include:
Return to Diagnosis to review the types of blood tests used for bleeding disorders.
Your doctor may recommend that you adopt lifelong heart-healthy lifestyle changes to improve your health and help reduce your risk of ischemic heart disease, which is very difficult to manage in people who have a bleeding disorder.
A healthy lifestyle includes:
To prevent or treat complications, your doctor may recommend the following.
Bleeding in the throat, abdomen, or brain can be a life-threatening complication of hemophilia. Call 9-1-1 if you or someone else has recently had an injury to the head, throat, or abdomen, or has the following.
Signs and symptoms of bleeding in the brain, which include:
Signs and symptoms of bleeding in the throat or digestive system, which include:
If you have a child with a bleeding disorder, talk with your child’s healthcare team. Get education and support from a hemophilia treatment center, support groups, and camps.
For children with moderate to severe hemophilia, your doctor may recommend replacement factor therapy on a regular schedule to help prevent spontaneous bleeding and to reduce bleeding from trauma. To help your child stay safe, your doctor may tell you to:
Talk with your child’s teachers and coaches about when to contact you and when to call 9-1-1.
Women who have a bleeding disorder have unique risks, such as heavy menstrual bleeding and pregnancy complications. Genetic carriers for hemophilia can also have bleeding complications, such as after childbirth, even though they may not have other symptoms. During pregnancy and childbirth and after childbirth, your doctor may suggest changes in your treatment plan and coordinating care with your hemophilia treatment center.
To stay safe living with a bleeding disorder: