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Lymphanigoleiomyomatosis (LAM) Research Studies

Lymphangioleiomyomatosis (LAM) and Tuberous Sclerosis Research Study - Protocol Description

If you have been diagnosed with Lymphangioleiomyomatosis (or LAM) or with tuberous sclerosis complex (TSC), you may be eligible to participate in a research study at the NIH Clinical Center. The purpose of this research study is to improve our understanding of LAM and TSC. Eligible patients undergo a comprehensive pulmonary evaluation at the Clinical Center in Bethesda, MD.

There is no cost to you for travel or medical testing and, should you wish, information from your evaluation will be provided for your physicians. 

For further information, please contact our research coordinator at toll free telephone: 1-877-NIH-LUNG (1-877-644-5864), extension 3, email:


Last Updated: July 31, 2015