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Research Meeting Summaries

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April 5, 2016 to April 6, 2016
On April 5-6, 2016, the NHLBI, DHHS/OASH, and FDA sponsored a meeting on Scientific Priorities in Pediatric Transfusion Medicine at NHLBI in Bethesda, MD. The goal of this meeting was to identify important research questions that could be answered in the next 5-10 years, and which would have the potential to transform the clinical practice of pediatric transfusion medicine.
September 25, 2015

Chronic Obstructive Pulmonary Disease (COPD) is the third leading cause of all deaths in the U.S., the most recent available data showing it was the primary cause of death for >76,000 women and >68,000 men 45 and over in 2013 (CDC Wonder accessed on September 24, 2015).

September 15, 2015 to September 16, 2015

The National Heart, Lung, and Blood Institute (NHLBI) convened a working group meeting consisting of experts in multi-level intervention research on September 15 and 16, 2015. The purpose of the meeting was to provide recommendations that would be useful for designing and implementing multi-level interventions that target hard-to-reach, high risk or vulnerable populations and communities.

September 3, 2015 to September 4, 2015

Pediatric Rare Lung Disease (PRLD) is a term that refers to a heterogeneous group of rare disorders in children. In recent years, this field has experienced significant progress marked by scientific discoveries, multi-center and interdisciplinary collaborations, and efforts of patient advocates. While genetic mechanisms underlie many PRLDs, pathogenesis remains uncertain for many of these disorders. Further, epidemiology and natural history are insufficiently defined, and therapies are limited.
To develop strategies to accelerate scientific advancement for PRLD research, the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health convened a strategic planning workshop. The workshop brought together a group of scientific experts, intramural and extramural investigators, and advocacy groups with the following objectives:
1) To discuss the current state of PRLD research;
2) To identify scientific gaps and barriers to increasing research and improving outcomes for PRLDs;
3) To identify technologies, tools, and reagents that could be leveraged to accelerate advancement of research in this field; and
4) To develop priorities for research aimed at improving patient outcomes and quality of life. This report summarizes the workshop discussion and provides specific recommendations to guide future research in PRLD.

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