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You’re the expert in managing this condition day to day. Talk with your providers to make sure treatment plans reflect your personal needs and goals that will help you live a longer and healthier life.
Because people with cystic fibrosis now live longer, it’s important for adolescents and teens with the condition to make a plan for shifting into adult care. As they grow more independent, it is imperative for them to know how to take charge of their own health care, manage their own appointments, and take their medicines and other treatments exactly as prescribed by their healthcare providers. Not following treatment recommendations can lead to
Because newborn screening varies from state to state, it is important to talk to your baby’s healthcare provider if the test result is inconclusive (uncertain) or if you suspect your baby may have cystic fibrosis based on other symptoms.
Many people believe that only people who are white get cystic fibrosis. But the disease can occur in anyone and sometimes gets missed in people who are Black or Hispanic or have Asian ancestry, including from China, India, Indonesia, Iran, Japan, Korea, Pakistan, and Vietnam.
