New parents who have cystic fibrosis say it is important to be prepared and organized so you can manage the demands of parenthood and your own cystic fibrosis care. Babies take a lot of time and attention, but don’t ignore yourself by not it is also important to stick with your treatment plan. Your partner, family and friends, and community may be sources of support to help care for your child and keep your treatment on track. Some new parents even say that their children learn to help with

Health Disparities in Cystic Fibrosis

Although medical advances mean that more people with cystic fibrosis live into adulthood, not everyone gets the same benefits. For example, having a low income is linked with worse lung function, higher death rates, and poorer nutritional status for people with cystic fibrosis. This is true even when comparing groups that have the same number of healthcare visits and take long-term prescription medicines. Also, people of color are more likely to be diagnosed

Health Awareness for Carriers

If you are a carrier, you may have some mild cystic fibrosis symptoms. Talk with your healthcare provider about ways to lower your risk of complications. Your provider may recommend extra screening tests for colorectal cancer. Limiting the amount of alcohol you drink may lower your risk of pancreatitis.

Vaccine safety for people who have had organ transplants

It can be dangerous for people with cystic fibrosis who have had a lung or liver transplant to receive certain vaccines. Your healthcare provider can advise you about vaccines.