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Research Feature
When CBS’s 60 Minutes aired the compelling story of a Florida woman whose severe sickle cell disease symptoms were alleviated with a cutting edge gene therapy technique, people listened. A lot of them. The treatment happened at the National Institutes of Health, and since the showcasing of its dramatic success, NIH has been responding to scores of...
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Research Feature
A conversation with Dr. Kolapo Oyebola It is not lost on Kolapo Oyebola, Ph.D., that half the sickle cell disease cases worldwide can be found in his native Nigeria. This tragic fact, said the National Institutes of Health (NIH) postdoctoral fellow, has long been top of mind—and he is bent on doing something about it. Something big. He wants to...
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Research Feature
Soon after birth, a baby in the United States is tested for sickle cell disease, the often-devastating genetic blood disorder affecting more than 100,000 Americans and 20 million of people worldwide. If positive, that newborn typically begins a course of treatment that can greatly prolong life and help stave off complications of the disease. But in...
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Media Availability
WHAT: A scientist from the National Institutes of Health will present promising, early results from a human clinical trial testing a novel gene replacement therapy in people with severe sickle cell disease. Preliminary findings suggest that the approach has an acceptable level of safety and might help patients consistently produce normal red blood...
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Research Features
More than 100,000 people in the United States and an estimated 20 million worldwide suffer from sickle cell disease, a group of inherited, often life-threatening blood disorders that wreak havoc on the body. Mainly affecting African-Americans, Hispanics and Asians, the disease is caused by a mutation in the gene that makes oxygen-carrying...
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Research Feature
When the NHLBI announced the launch of the Cure Sickle Cell Initiative on September 13, many in the sickle cell disease community responded with enthusiasm. Patients, family members, and advocates took to social media and other channels to say they are ready to do their part, starting with spreading the news about the initiative to their neighbors,...
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News Release
The National Institutes of Health (NIH) today announced the launch of a new initiative to help speed the development of cures for sickle cell disease, a group of inherited blood disorders affecting at least 100,000 people in the United States and 20 million worldwide. The Cure Sickle Cell Initiative will take advantage of the latest genetic...