The National Heart, Lung, and Blood Institute (NHLBI) is strongly committed to supporting research aimed at preventing and treating heart, lung, and blood diseases and conditions and sleep disorders.
NHLBI-supported research has led to many advances in medical knowledge and care. For example, this research has uncovered some of the causes of chronic lung diseases, as well as ways to prevent or treat these diseases.
The NHLBI continues to support research aimed at learning more about chronic lung diseases, including sarcoidosis. For example, NHLBI-supported research on sarcoidosis includes studies that explore:
- Whether a popular cholesterol-lowering medicine can help treat sarcoidosis that affects the lungs
- How certain bacteria and toxins in the mouth, lungs, and digestive system may affect sarcoidosis and other diseases
- How genes play a role in the development of sarcoidosis and other lung diseases
Much of this research depends on the willingness of volunteers to take part in clinical trials. Clinical trials test new ways to prevent, diagnose, or treat various diseases and conditions.
For example, new treatments for a disease or condition (such as medicines, medical devices, surgeries, or procedures) are tested in volunteers who have the illness. Testing shows whether a treatment is safe and effective in humans before it is made available for widespread use.
By taking part in a clinical trial, you can gain access to new treatments before they’re widely available. You also will have the support of a team of health care providers, who will likely monitor your health closely. Even if you don’t directly benefit from the results of a clinical trial, the information gathered can help others and add to scientific knowledge.
If you volunteer for a clinical trial, the research will be explained to you in detail. You’ll learn about treatments and tests you may receive, and the benefits and risks they may pose. You’ll also be given a chance to ask questions about the research. This process is called informed consent.
If you agree to take part in the trial, you’ll be asked to sign an informed consent form. This form is not a contract. You have the right to withdraw from a study at any time, for any reason. Also, you have the right to learn about new risks or findings that emerge during the trial.
For more information about clinical trials related to sarcoidosis, talk with your doctor. You also can visit the following Web sites to learn more about clinical research and to search for clinical trials:
For more information about clinical trials for children, visit the NHLBI’s Children and Clinical Studies Web page.
Living With and Managing Sarcoidosis05/18/2011
This video—presented by the National Heart, Lung, and Blood Institute, part of the National Institutes of Health—shows how Romaine, an executive and wife, has coped with having sarcoidosis. Although she had no symptoms, Romaine learned she had sarcoidosis of the lung as the result of testing done for another reason.
Prior to being diagnosed with sarcoidosis, Romaine had never heard of the disease. Within about 5 years of her diagnosis, she began having symptoms. Her symptoms started with a dry cough, which became chronic about a year after it first developed.
Unable to speak a sentence without coughing, Romaine began taking medicine to treat her sarcoidosis. Also, she began to focus on following a healthy lifestyle, including eating well and being physically active. By following her treatment plan and making lifestyle changes, Romaine is able to live a full, active life.
For more information about living with and managing sarcoidosis, go to the Health Topics Sarcoidosis article.