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It’s an unhappy truth: When it comes to chronic obstructive pulmonary disease, or COPD, rural Americans bear a disproportionate burden, as they are twice as likely to suffer with the debilitating lung disease as those living in metropolitan areas. Yet, while rural Americans represent 20 percent of the U.S. population—that’s 60 million people—only 11 percent of doctors practice in their communities. That means many must rely on physician assistants or nurses for their primary care.
One problem: many of these professionals, doctors included, lack the specific training and education needed to offer enhanced care for people at risk for or diagnosed with COPD.
The COPD Foundation, a not-for-profit organization established to expand services and improve the lives of those living with COPD, aims to provide the type of training that can improve the understanding of COPD among these rural health care professionals. Under a rural health initiative called TOUCH (Teaching and Outreach in Underserved Communities and Health Improvement) COPD, the foundation will provide training opportunities to help professionals recognize COPD symptoms early and give real-life practice skills needed to effectively treat people with the disease.
With funding from the National Heart, Lung, and Blood Institute’s (NHLBI) COPD Learn More Breathe Better® community subcontractor program, the COPD Foundation will focus the initiative’s efforts in Tennessee, a state with a significant rural population, and where nearly 479,000 have been diagnosed with the disease.
TOUCH COPD will have three components. First, the COPD Foundation will implement a train-the-trainer program in Middle Tennessee to teach primary care physicians, skilled nursing professionals, homecare workers, and pharmacists about a variety of topics related to COPD. In turn, the participants will teach other health care providers in the area. The program includes two webinars about properly diagnosing COPD, along with a workshop that allows the providers to apply what they know about COPD diagnosis, treatment, and management to practical situations. As this program grows into a sustainable project, it will engage even more providers, refine the webinars and workshops as needed, and create new training materials. The goal, ultimately, is to develop a large community of professionals that can learn from each other and share best practices as they care for people with COPD.
In addition to these trainings, the COPD Foundation will equip participants with tools and materials to use and disseminate during their education and outreach efforts. The foundation will use NHLBI’s COPD Learn More Breathe Better program materials in conjunction with the organization’s own resources, all of which focus on COPD basics, identifying symptoms, and treatment strategies.
Finally, the TOUCH COPD program will partner with the Saint Thomas Health system in Tennessee to provide COPD awareness and education at TOUCH COPD’s outreach events. This partnership provides a unique opportunity for TOUCH COPD to educate people at the events and direct those believed to be at risk to the Saint Thomas physician booth for follow up.
“We appreciate this opportunity to produce a program that will provide needed support to those communities that have high COPD rates and limited access to resources,” said Corinne Costa Davis, chief executive officer of the COPD Foundation.
The TOUCH COPD program closely aligns with the COPD National Action Plan as well as the NHLBI’s COPD Learn More Breathe Better program, which aims to empower people with COPD, along with their families and caregivers, while ultimately improving the quality of their care.
Shortness of breath, chronic coughing, wheezing—these are some of the signs of chronic obstructive pulmonary disease, or COPD, and countless people experience them every day. For the 16 million who already have been diagnosed with the disease, the symptoms are often manageable with the right care. But millions of others continue to suffer, often mistaking COPD signs as natural fallout of aging or being out of shape.
This lack of awareness is what Western Michigan University Homer Stryker M.D. School of Medicine (WMed) is determined to do something about. With funding from the National Heart, Lung, and Blood Institute’s (NHLBI) COPD Learn More Breathe Better® community subcontractor program, the medical school is launching an innovative community education plan to help improve care and ultimately reverse the tragic toll of COPD in Michigan. In Kalamazoo alone, more than 5,000 people have been diagnosed with the disease, and many more have it and don’t know it. COPD is the third leading cause of death in the state.
WMed wants to show the community that it doesn’t have to be this way. While not curable, COPD is highly treatable, and early detection and diagnosis can lead to an improved quality of life. The key is finding ways to identify people at risk and encourage them not to underreport symptoms or visit their health care provider only when their symptoms have become severe.
The school’s multi-pronged approach is designed to try to do that. A primary aspect of the program is its interprofessional outreach team, comprised of medical students and health care providers in the Kalamazoo area. The outreach team, along with approximately a half-dozen community ambassadors, will immerse itself in respiratory therapy training, then help teach other health care providers — current and future — how to get the word out to the community about the prevention, diagnosis, treatment, and management of COPD.
The outreach team will take a leading role in hosting community events at prominent gathering places, such as churches and libraries, to reach those who may not have easy access to traditional health care settings. The events will help participants understand the risk factors of COPD, how to recognize symptoms and test for potential air flow obstruction, and how previously diagnosed individuals can optimize their treatment regimens.
Additionally, the outreach team will help disseminate NHLBI’s COPD Learn More Breathe Better program materials and resources, perform non-diagnostic spirometry to identify individuals potentially at risk for breathing disorders, evaluate inhaler use techniques, and empower people to obtain more formal care at a local clinic.
“Our project is designed to get information out in a way people can use to look at their symptoms, look at their treatments, and learn how to keep their symptoms under control, so they can live their best lives,” says Mike Hess, chronic lung disease coordinator at WMed.
WMed’s outreach events will be supplemented by a broader local campaign focused on raising awareness about COPD — and specifically, about WMed’s program and its goals.
“Early diagnosis of COPD is critical to optimal management,” explains Hess, “but many in Kalamazoo struggle to connect with the right resources to get that diagnosis, and many more struggle to manage their symptoms appropriately after they are finally diagnosed.”
All WMed activities will contribute to larger goals of the COPD National Action Plan, a comprehensive framework for reducing the burden of COPD.
“WMed looks forward to helping everyone in our city breathe a little easier,” says Hess.
If you live in a rural area in the United States, you’re twice as likely as an urban dweller to be diagnosed with chronic obstructive pulmonary disease, or COPD, and the main reason is simple: lack of easy access to health care.
Residents in rural areas often live dozens of miles from health care resources and facilities, and that creates especially onerous challenges for those with COPD, who often need frequent care. The problem can be even more devastating for the many who don’t even know they have COPD, as they delay getting diagnosed until their symptoms become so severe they need aggressive treatment or hospitalization.
In South Carolina, where some 274,000 residents have been diagnosed with the disease—most of them from rural areas—these challenges are all too common. They are, in part, why COPD has become the third leading cause of death in the state.
But the South Carolina Tobacco-Free Collaborative (SCFTC) is hoping to do something about it. With funding from the National Heart, Lung, and Blood Institute’s (NHLBI) COPD Learn More Breathe Better® program, SCFTC will place rural health clinics at the forefront of COPD education and care efforts by supplying them with custom, information-packed “change packages.” The idea is offer information and guidance that can help create consistency in care, ultimately improving the diagnosis, prevention, treatment, and management of COPD.
Because smoking is the leading cause of COPD, the change package will come with tobacco intervention materials and tools to help at-risk individuals quit smoking. The rural health clinics will also be able to direct people to the South Carolina Tobacco Quitline for extra support. NHLBI’s COPD Learn More Breathe Better program materials will supplement these elements of the change package, and SCTFC will partner with local tobacco coalitions that can serve as training resources for the clinics.
To assess the program and its effectiveness, SFTFC will conduct surveys before and after the program to evaluate changes in knowledge, attitudes, and behavior among the rural clinic providers as well as shifts in patient outcomes. The Collaborative will then evaluate how those changes sync up with the COPD Learn More Breathe Better program goals and guidelines for the diagnosis, prevention, treatment, and management of COPD.
“The South Carolina Tobacco-Free Collaborative is pleased to be selected as a subcontractor for the NHLBI’s COPD Learn More Breathe Better program,” says Colleen Campbell Bozard, interim executive director of the SCFTC. “We look forward to working with our partners and rural health clinics statewide to reach those diagnosed with and at high risk for COPD to improve diagnosis and treatment outcomes.”
While the “change package” is focused on health care providers at rural health clinics, the intervention ultimately aims to reduce the COPD burden among those living with the disease, their families, and caregivers. Both of which are goals of the COPD National Action Plan, the first-ever blueprint, requested by Congress with input from the COPD community, for a unified fight against the disease.
While attention has been paid to the medical and support needs of people living with chronic obstructive pulmonary disease (COPD), less time has been devoted to considering and addressing the needs of their informal caregivers. In many cases, COPD caregivers are family members who possess strong emotional and personal connections with the persons living with COPD, but who typically lack medical training on how to best support their loved ones.
One study shows that 70 percent of COPD patients have one or more informal caregivers. Because of the informal nature of their role, caregivers are often under-prepared for the range of challenges of tending to the family member or friend with copd. A study on COPD caregivers’ burden found that 35 percent of informal COPD caregivers report having health-related problems due to their caregiving role.
Respiratory Health Association, a public health leader in Illinois since 1906, has found a way to lighten the load by developing the COPD Caregiver’s Toolkit, a resource designed to empower COPD caregivers with information and effective strategies that can be used at every stage of the caregivers’ journey. The toolkit comes with customized, accessible information about what COPD is, along with guidance on some of the most common concerns caregivers may face, such as how to manage a home for someone living with COPD, how to prepare for visits with a health care provider, how to help after a COPD flare-up or hospital stay, and how to engage in healthy self-care.
With support from the National Heart, Lung, and Blood Institute’s (NHLBI) COPD Learn More Breathe Better® community subcontractor program, Respiratory Health Association will work with select pulmonary rehabilitation facilities in urban and rural Illinois, as well as Midwest health care providers, to disseminate the COPD Caregiver’s Toolkit. The focus mainly will be in states where COPD rates are among the highest in the country, such as Ohio and Michigan.
To develop the toolkit, Respiratory Health Association conducted interviews with health care providers working in pulmonary rehabilitation, people living with COPD, and COPD caregivers themselves. This information helped inform the kind of support and resources the caregivers needed, and the result is a user-friendly tool grounded in COPD clinical guidelines. (The toolkit has not been reviewed by the NHLBI.)
Following distribution of the toolkit, Respiratory Health Association will conduct focus groups and perform other evaluation activities with COPD caregivers to assess the usability and impact of the toolkits. The Association hopes this approach will offer key insights that will inform expansion of the program in valuable and sustainable ways.
“Thank you to NHLBI’s COPD Learn More Breathe Better program for recognizing the important role of COPD caregivers in caring for people living with COPD,” said Joel Africk, President and CEO of Respiratory Health Association. “This funding will allow us to disseminate needed COPD caregiver resources in Illinois, Wisconsin, Ohio, Indiana, and Michigan.”
While working to improve both patient and caregiver outcomes, Respiratory Health Association will also align its efforts to the COPD National Action Plan. The COPD Caregiver’s Toolkit provides an opportunity to empower COPD caregivers while working to improve the quality of care for those living with COPD. Those efforts include improving diagnosis, prevention, treatment, and management of the disease.
Smoking is the leading cause of preventable death in the United States, yet in New Hampshire an estimated 18 percent of adults smoke, a rate that surpasses the national average of 17 percent. Nowhere is the toll more evident than among people with chronic obstructive pulmonary disease, or COPD, as smoking accounts for as many as nine out of ten COPD-related deaths.
Despite a decline in the prevalence of COPD in New Hampshire—6.1 percent to 5.7 percent from 2015 to 2016—the disease continues to significantly impact communities throughout the state. And that is where Breathe New Hampshire, a non-profit organization focused on critical issues related to lung health, aims to make a difference. Through support from the National Heart, Lung, and Blood Institute’s (NHLBI) COPD Learn More Breathe Better® community subcontractor program, breathe new hampshire will join forces with other groups to try to reduce smoking rates through training and education.
Specifically, Breathe New Hampshire will partner with the state’s Tobacco Prevention and Cessation Program (TPCP), the Foundation for Healthy Communities (FHC), and IDN 4/Network4Health, a collaboration of health organizations in New Hampshire. Together, they will work to develop training content, resources, and toolkits for health care professionals. These trainings, called Tobacco Use Disorder Treatment Trainings, will specifically focus on primary care practices and offer practical approaches to tobacco treatment and counseling around the Greater Manchester area.
The program also will work to increase provider referrals to QuitWorks-NH, a smoking cessation service that links patients to the state’s tobacco treatment services. And it will work to increase community-wide discussion about tobacco treatment, offering patients concrete options to quit using tobacco products. Some 75 percent of COPD cases are caused by smoking, and Breathe New Hampshire’s goal is to help more people stop smoking, ultimately improving health outcomes for patients, while offering a potential, long-term reduction in COPD diagnoses and flare-ups.
Allyssa Thompson, Director of Programs at Breathe New Hampshire shares, “Thanks to a subcontract from National Heart, Lung, and Blood Institute’s COPD Learn More Breathe Better program, Breathe New Hampshire is developing and piloting Tobacco Use Disorder Treatment Provider Trainings in primary care practices around Greater Manchester, with the goal of reducing smoking rates and ultimately the burden of COPD. We look forward to sharing best practices with the other subcontractors around the country.”
Additionally, Breathe New Hampshire will work to formalize and facilitate a COPD collaborative composed of partners across the country committed to the goals of the COPD National Action Plan and improving the quality of life for people with COPD. Breathe New Hampshire’s COPD Collaborative will allow for information sharing among the different partners, creating an environment for shared learning and thinking about how to advance the key tenets of the COPD National Action Plan.
Underscoring the importance of COPD to the health of the nation, the Senate Appropriations Committee in FY2012 encouraged the NHLBI "to work with community stake-holders and other Federal Agencies, including CDC, to develop a national action plan to respond to the growing burden of this disease". The NHLBI, the NIH component with primary responsibility for lung diseases, supports research and education activities on COPD and interacts with many of the various Federal Agencies and Institutes of the NIH that deal with this disease. In response to this congressional encouragement, the NHLBI hosted in Bethesda, Maryland, on May 3rd 2013, a forum of representatives from Federal government Agencies and Institutes (see list of participants below). The purpose of the meeting was to share information about current activities related to COPD and discuss opportunities for further cooperation and enhanced effectiveness of the federal response to this serious public health problem.
NPR News' Talk of the Nation talked with patients and lung specialists about Chronic Obstructive Pulmonary Disease. Grace Anne Dorney Koppel, who is working closely with the NHLBI and the COPD Learn More Breathe Better program, is one of the patients to share her personal story with COPD. She is joined by Dr. Enid Neptune, lung specialist and researcher at Johns Hopkins University School of Medicine, who discusses latest treatment and research, and encourages people at-risk to talk with their health care provider about their symptoms. Read or listen to the full story here: http://www.npr.org/2013/06/12/191028683/fighting-to-breathe-living-with-copd
Everyday Health published an article on the impact of air quality on people with COPD. The article cites studies from around the globe that indicate links between the lung disease and air pollution, and provides tips on what to do to avoid this health risk inside and outside of one's home. Gail Weinmann, MD, Deputy Director of the Division of Lung Diseases at the NHLBI, gives advise on how to deal with outdoor air pollution, such as checking air pollution reports and the effects of altitude and humidity on breathing. Read the article here: http://www.everydayhealth.com/copd/copd-risks-air-pollution-and-your-health.aspx
Health Monitor published a story on Valerie Chang, Breathe Better Network member and founder of the Hawaii COPD Coalition. In addition to her personal story with COPD, the article provides tips on how to manage the disease on a daily basis. The print version of the article includes an overview of the symptoms of the lung disease and refers to the Program's website for more information. Read the online version here: http://www.healthmonitor.com/copd/room-breathe
KXAN.com in Austin, Texas, discusses how music therapy can help those suffering from COPD. Patients use harmonicas to improve lung function and practice breathing in a fun setting. The article includes data from the NHLBI and links to its resources. Read the article here: http://www.kxan.com/dpp/news/local/austin/harmonicas-ease-copd-blues
Everyday Health provides an overview of the causes and prevalence of COPD worldwide. The article offers an overview of strategies a variety of organizations are pursuing to combat the disease and also mentions the National Heart, Lung, and Blood Institute's collaboration with the World Health Organization to develop the Global Initiative for Chronic Obstructive Lung Disease (GOLD). Read the article here: http://www.everydayhealth.com/copd/copd-around-the-world-3524.aspx
West Virginia Public Broadcasting features a broadcast segment on their website about prevalence of COPD in West Virginia. The data provided was collected in the 2011 CDC BRFSS survey and co-supported by the National Heart, Lung, and Blood Institute. Read the article here: http://www.wvpubcast.org/newsarticle.aspx?id=28498
The news site NewsOK.com details an Oklahoma woman's experience with COPD. The lung disease is a growing problem in Oklahoma, having just tied with West Virginia for the state with the fourth highest occurrence of COPD. The data comes from CDC's 2011 BRFSS survey. The addition of statewide COPD surveillance data to the BRFSS was co-supported by the National Heart, Lung, and Blood Institute. Read the article here: http://newsok.com/chronic-lung-disease-affects-many-oklahomans/article/3749780/?page=1
RT Magazine reports on NHLBI's COPD awareness study that saw a decline in COPD awareness among U.S. adults. Dr. James P. Kiley, director of the Division of Lung Diseases at the National Heart, Lung, and Blood Institute, is quoted in the story, saying that these results provide an opportunity to mobilize and re-energize outreach efforts. Read the article here: http://www.rtmagazine.com/research/18648-copd-awareness-drops-according-to-nih-study
The American Pharmacists Association's Pharmacist.com reports on nationwide prevalence data on COPD that was collected by CDC's BRFSS survey for the first time. The addition of statewide COPD surveillance data to the BRFSS was co-supported by the National Heart, Lung, and Blood Institute. View the article here: http://www.pharmacist.com/copd-nationwide-prevalence-data-reported-2011
The Kansas City Infozine reports on the latest NHLBI survey on COPD awareness. The study indicates that current awareness levels have declined among certain groups with physicians reporting a major barrier to diagnosis to be underreported symptoms. The article quotes Dr. James P. Kiley, director of the Division of Lung Diseases at by the National Heart, Lung, and Blood Institute, and discusses the Institute's plans to continue to educate the public on the lung disease. View the article here: http://www.infozine.com/news/stories/op/storiesView/sid/53927/
The Tri-County Sun Times provides an in-depth report on results of the NHLBI 2012 COPD awareness study. Dr. James P. Kiley, director of the Division of Lung Diseases at the National Heart, Lung, and Blood Institute, notes that the NHLBI will continue to engage with COPD patients, their caregivers, medical societies and others through the COPD Learn More Breathe Better® program and its partnership network to reach those at risk on a local level. View the article here: http://www.thevillagessuntimes.com/article/copd-awareness-returns-2008-levels-according-new-nih-survey
Health Day reports on nationwide prevalence of COPD in the U.S. It is estimated that 15 million have COPD and prevalence occurrence of the condition is highest in Kentucky. It is the first time that this data had been collected via CDC's BRFSS study. The addition of this statewide module was co-supported by the National Heart, Lung, and Blood Institute. View the article here: http://consumer.healthday.com/Article.asp?AID=670948
Reporter Joe Balintfy of NIH Radio spoke with Dr. James P. Kiley, Director of the Division of Lung Diseases at the National Heart, Lung and Blood Institute, about COPD, its symptoms and risk factors, and the importance of early detection and treatment. To listen to the report click here: http://www.nih.gov/news/radio/nov2012/20121109NHLBI-COPD.htm
About.com provides a list of organizations and ideas on how to get involved in National COPD Awareness Month, including resources on the Program's website. Read about ways to get involved and how to raise awareness about COPD: http://copd.about.com/b/2012/11/06/november-marks-national-copd-awareness-month.htm
From June 29 to July 1, the COPD Learn More Breathe Better® program's signature event series Country Conquers COPD™ stopped at the San Diego County Fair to provide free screenings to fairgoers. The San Diego Union-Tribune announced the Program's presence at the Fair. View the article here: http://www.utsandiego.com/news/2012/jun/27/free-copd-screenings-offered-county-fair/
HealthDay reported on COPD Learn More Breathe Better® program survey results showing that many of those at risk for COPD don't talk to their doctor about symptoms. View the article here: http://consumer.healthday.com/Article.asp?AID=659179
With the help of the COPD Learn More Breathe Better® program, the CDC produced a podcast to highlight the causes of COPD and tips for prevention. To listen to the podcast click here: http://www2c.cdc.gov/podcasts/player.asp?f=4166871
The Journal Sentinel online ran a column interviewing Dr. James P. Kiley, Director of the Division of Lung Diseases at the National Heart, Lung and Blood Institute about COPD symptoms, risks and diagnosis.
The OC Register interviewed Dr. James P. Kiley, Director of the Division of Lung Diseases at the National Heart, Lung and Blood Institute about the signs and symptoms of COPD. View the article here: http://www.ocregister.com/articles/copd-278179-people-disease.html
With the help of the COPD Learn More Breathe Better® program, the CDC produced a podcast to highlight the causes of COPD and tips for prevention. To listen to the podcast click here: http://www2c.cdc.gov/podcasts/player.asp?f=4166871
HealthDay reported on COPD Learn More Breathe Better® program survey results showing an increase in awareness of COPD among American adults. View the article here: http://consumer.healthday.com/Article.asp?AID=645765
RT Magazine reported on COPD Learn More Breathe Better® program survey results showing an increase in awareness of COPD among American adults. The article also mentioned the new public service announcement program that highlights common COPD signs and symptoms. View the article here: http://www.rtmagazine.com/news/2010-11-10_01.asp
The NIH Record reported on COPD Learn More Breathe Better partner, the COPD Foundation, bringing its "COPD Shuttle" ride to the NIH campus on May 27 for a virtual tour of the lung and demonstration of the health risks of smoking and air pollution. View the article here: http://nihrecord.od.nih.gov/newsletters/2010/06_25_2010/story5.htm
Science Daily reported on an NHLBI-funded study on COPD and heart function which appeared in the January 21 issue of the New England Journal of Medicine. Susan B. Shurin, M.D., NHLBI acting director, and James P. Kiley, PhD, director, NHLBI Division of Lung Diseases, are both quoted. View the article here: http://www.sciencedaily.com/releases/2010/01/100120211022.htm
An NHLBI-funded study on COPD and heart function which appeared in the January 21 issue of the New England Journal of Medicine was reported on by WebMD. NHLBI Acting Director Susan B. Shurin, MD., is quoted. View the article here: http://www.webmd.com/lung/copd/news/20100120/mild-copd-may-hurt-the-heart
MedPage Today reported on an NHLBI-funded study on COPD and heart function which appeared in the January 21 issue of the New England Journal of Medicine. Lead author R. Graham Barr, MD, of Columbia University, provides an audio report. To read the article and listen to the report, visit: http://www.medpagetoday.com/Pulmonology/SmokingCOPD/18070
AARP Bulletin article on new pulmonary rehab Medicare benefit features Learn More Breathe Better resources.
Grace Anne Dorney Koppel and Ted Koppel recently appeared on the PBS show Second Opinion to discuss living with COPD, how it has affected their family and the importance of early diagnosis and treatment.
Survey findings from the NHLBI's COPD Learn More Breathe Better® program were featured on WebMD. The article focused on the increase in awareness of COPD and its treatability. View the article here: www.webmd.com/lung/copd/news/20091104/copd-awareness-climbs-understanding-lags
HealthDay reported on COPD Learn More Breathe Better® program survey results showing an increase in awareness of COPD among American adults but a reluctance of some to talk to their doctors or health care providers. The HealthDay article also provided some insights into how optimistically physicians view COPD and its treatability. The Atlanta Journal Constitution also ran this article online. View the article here: www.healthday.com/Article.asp?AID=632735
Results from a COPD Learn More Breathe Better® program survey conducted for National COPD Awareness Month were highlighted. James P. Kiley, PhD, director, NHLBI Division of Lung Diseases is quoted in this article. View the article here: www.rtmagazine.com/news/2009-11-03_01.asp
The COPD Learn More Breathe Better® program was featured on the About.com COPD Blog for National COPD Awareness Month. See the posting here: copd.about.com/b/2009/11/02/november-is-copd-awareness-month.htm
On October 24, 2009 the COPD Learn More Breathe Better® program held its second Country Conquers COPD signature event at the Barbecue Festival in Lexington, NC. In a recap of the day's events, the Winston-Salem Journal mentioned that information was being handed out about COPD at the Festival. Also, Roy Pleasants of the North Carolina COPD Task Force noted the high incidence rate of COPD in the state during an interview.
The Courier-Journal profiled two women currently living with COPD and highlighted the need for early detection. The article references the COPD Learn More Breathe Better® program as well as National Heart, Lung, and Blood Institute statistics. The Courier-Journal reaches 215,328 readers.
John McGuire of the COPD Foundation was interviewed about COPD and the COPD Awareness Night at the Ballpark event during the pre-game radio show. Click here to listen.
Dr. James Donohue of the North Carolina COPD Task Force was interviewed about COPD during the live television broadcast of the Durham Bulls game on COPD Awareness Night at the Ballpark. Dr. Donohue spoke to the prevalence of COPD in North Carolina and encouraged fans to visit the screening area to learn more. To listen to the interview, click here.
The local NBC station in Raleigh/Durham, North Carolina aired a story about living with COPD that featured COPD patient Archie Copeland and Dr. James Donohue, Chief of Pulmonary Medicine at the University of North Carolina School of Medicine and North Carolina COPD Task Force member. The reporter visited the COPD Foundation’s Mobile Screening Unit for a first hand look at spirometry testing.
The summer edition of Healthy Living, a quarterly magazine available at CVS pharmacies nationwide, featured a two-page story titled, “Life’s Breath.” In the article, Grace Anne Dorney Koppel explained how she handles the challenges of COPD and her advocacy efforts with the COPD Learn More Breathe Better® Program. Each issue of Healthy Living reaches more than 3.5 million readers.
The April 27 issue of The Chicago Tribune featured a story on Grace Anne Dorney Koppel’s battle with COPD and her participation in the launch of the Illinois COPD strategic action plan. The Sunday edition reaches nearly 900,000 readers.
NHLBI's COPD Learn More Breathe Better® Program was featured in the November 29 issue of The New York Times in a story on COPD, part of its “Six Killers” series on the leading causes of illness and death in the United States.
The front page story featured James Kiley, PhD, Director, NHLBI Division of Lung Diseases, patient advocate Grace Anne Dorney Koppel, and a number of our partners in the COPD community.
The New York Times reaches more than 1.1 million readers, with about 13 million more logging in online.
The COPD Learn More Breathe Better® program was featured on CBS Evening News with Katie Couric, raising awareness and understanding of COPD with nearly 6 million viewers. Program spokesperson Grace Anne Dorney Koppel and her husband Ted Koppel spoke with correspondent Dr. Sanjay Gupta about their experiences with COPD. James Kiley, Ph.D, Director of the Division of Lung Diseases at NHLBI addressed prevalence statistics and the epidemic nature of the disease.
Grace Anne Dorney Koppel and her husband Ted Koppel appeared on ABC’s The View to talk about COPD on behalf of the COPD Learn More Breathe Better® program. Barbara Walters and Joy Behar spoke openly with Grace Anne about her diagnosis and management of COPD. The interview highlighted the symptoms and risk factors of COPD and the need for greater use of lung function tests.
The July edition of Woman’s Day featured a story titled, “Breathing Lessons” by Grace Anne Dorney Koppel, as told to Andrea Atkins. In the three-page article, Koppel tells her personal story from symptoms, to diagnosis, to management of her COPD. She encourages those experiencing symptoms to talk with their doctors or health care providers about taking a lung function test and directs them to the COPD Learn More Breathe Better® program website for additional information about COPD.
In addition, the article refers readers to the Woman’s Day website for additional resources on COPD.
Grace Anne Dorney Koppel and her husband Ted Koppel appeared on Retirement Living TV’s Daily Café to raise awareness about the fourth leading cause of death in the United States. Grace Anne encouraged those at risk to seek treatment, and she discussed how careful management of COPD can improve both one’s ability to breathe and enjoyment of life.
The Retirement Living website featured a link to the COPD Learn More Breathe Better® program website and the National Heart, Lung, and Blood Institute website.
The May 2nd edition of The Wall Street Journal featured a story titled, "Shining a Light on a Deadly Lung Disorder" by reporter Laura Landro. In her report, Landro outlines the extent of the problem of COPD in the U.S., the need for diagnosis, recent treatment advances, and the efforts underway by NHLBI and its partners to build awareness of the disease.
The story highlighted the efforts of the COPD Foundation and the American Association for Respiratory Care -- both COPD Learn More Breathe Better® partners -- in working to bring the Mobile Spirometry Unit to at-risk individuals across the country. The piece also references a survey by the American Lung Association, also a program partner.
Newsweek’s May 7 edition, which hit newsstands on April 30, features a special Spring Health Supplement including a “Coping with COPD” Q&A with Grace Anne Dorney Koppel. The piece also refers readers to www.nhlbi.nih.gov/health/educational/copd/ for additional information.
The article can also be accessed online at MSNBC's home page - click on the Newsweek banner. Online coverage includes more in-depth information about the disease, and COPD Learn More Breathe Better® fact sheets and educational materials.
Patient advocate Grace Anne Dorney Koppel appeared on ABC's Good Morning America to talk about COPD on behalf of the NHLBI's COPD Learn More Breathe Better® program. Diane Sawyer sat down with Grace Anne, who was diagnosed with COPD in 2001, to talk about her diagnosis, the steps she is taking to manage this disease, and the importance of those who are at risk of COPD learning about the disease and getting treatment if necessary.
Patient advocate Grace Anne Dorney Koppel visited National Public Radio’s Diane Rehm Show to talk about her fight against COPD. She was joined by James Kiley, Ph.D, Director of the Division of Lung Diseases at NHLBI and Robert Wise, M.D., Director of the Pulmonary Function Laboratory at Johns Hopkins Bayview Medical Center and the Multidisciplinary Training Grant in Pulmonary Medicine. You can listen to an archive of the show here.