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Volume 10, Issue 2
Quarter 2 2016
 

HUNDREDS JOIN TO DEVELOP NATIONAL ACTION PLAN FOR COPD

Country Conquers COPD (TM) Learn More Breathe Better

On February 29 and March 1, more than 200 individuals, including patients, caregivers, health care providers, pharmacists, researchers, advocacy groups, industry representatives and government officials, convened for the 2016 COPD Town Hall to work together to begin creating the National Action Plan for COPD. Currently, no standard plan for all 50 states exists. The National Action Plan for COPD will provide a framework to help reduce the burden of COPD nationwide.

After the opening remarks, all attendees were invited to join one of six working groups, each charged with developing objectives, strategies, and benchmarks for a specified goal of the plan.

On the first day, of the COPD Town Hall, government officials, COPD advocates, and physicians provided an outlook on the disease. Attendees also heard about the importance of collaboration to address the challenges of COPD in order to create a future for those affected by the disease

During the second day, each working group presented their recommendations based on the discussions on the previous day and answered attendee questions. The input received is currently being incorporated into the National Action Plan for COPD. Once drafted, organizations will have the opportunity to provide feedback to further organize the plan.

To view the general sessions of the COPD Town Hall, visit the links below.

Day 1 Video Recording
Day 2 Video Recording

Partnership among all COPD stakeholders is key to shaping the future of this disease. Stay updated on the development of the National Action Plan for COPD by visiting here.

 

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FEEDBACK FROM THE COMMUNITY

"My favorite part was the opportunity to work together with professionals who were interested in hearing from the patients who were able to attend - to listen as we shared with them what living with COPD is like, and what we as patients feel is important to include in an Action Plan," said Karen Deitemeyer, patient advocate.

"Excellent effort to initiate a working framework for a national COPD action plan," said Winston Liao, healthcare provider and group facilitator at the event. "The audience, with a diverse representation, was very engaged, enthusiastic, and energized by the speakers and their presentations, as well as by being a part of the 6 working groups."

"Teva was pleased to join with other industry organizations and COPD stakeholders in the unprecedented event to build a National COPD Action Plan," stated Shannon Dzubin, Director of Public Policy for North America at Teva Pharmaceuticals. "This was an important opportunity for all stakeholders to come together to consider both public policy and patient advocacy to address the unmet needs of the COPD community."

 

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PULMONOLOGISTS AND INTENSIVISTS AROUND THE WORLD TO GATHER FOR ATS 2016

World Spirometry Day 2012

Health care practitioners from around the world will meet in San Francisco to share insight and collaborate at the American Thoracic Society's Annual International Conference May 13-18, 2016. The annual conference is designed for pulmonary, critical care and sleep professionals from all walks of life, from the earliest stage in their career to seasoned professionals with international recognition. This year's focus is the conversion of today's science into tomorrow's care.

Sessions at the event are multi-disciplinary, including allergy/immunology, behavioral science, cardiology, pulmonary and several other areas. For COPD, there is a that includes pulmonary research, tobacco cessation and e-cigarette use and other clinical topics related to the disease.

If you are attending the event, the NHLBI will be present throughout the conference.
· On Sunday, May 15, we will be at booths L5-L9. Topics include respiratory outcomes, the FDA Tobacco Regulatory Science Program and an NHLBI-sponsored Tuberculosis System Biology program.
· Monday, May 16, we will be at booths L15-L19. Topics include precision-based medicine for COPD, the genetics of Idiopathic Pulmonary Fibrosis and the NHLBI K12 program. James Kiley, Director of the NHLBI, will also co-lead a discussion on the overlap between COPD and Asthma to understand the findings around viruses and respiratory illness and the differences of different allergies for patients. · Wednesday, May 18, we will be at booths L24-L28.Topics include research funding opportunities, the COPDGene® study, and phenotyping of pulmonary vascular diseases.

For more information on the discussions and booths, visit: http://conference.thoracic.org/program/resources/2016/advance-program.pdfimage of external icon. For more information on the conference, visit: http://conference.thoracic.orgimage of external icon

 

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SHARE YOUR IDEAS: NATIONAL COPD AWARENESS MONTH

NATIONAL COPD AWARENESS MONTH

Each year in November, people worldwide work together to raise awareness for COPD, or chronic obstructive pulmonary disease. In the United States, that month is marked as National COPD Awareness Month. It is an important opportunity to raise the level of attention on COPD, the third leading cause of death in American.

For this effort, The COPD Learn More Breathe Better© program conducts several activities to observe and support the month. For the past few years we, have conducted outreach and activities on social, traditional and broadcast media. We have also developed toolkits (check out some of the items on our website) for the Breathe Better Network and provided support to these partners and for the program at various levels.

To send us ideas or ask any questions, send us an email at copd@porternovelli.com. We look forward to hearing from you. If you are interested in becoming a Breathe Better Network partner, please send us an email as well.

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NEW MEMBER SPOTLIGHT: SOUTH LINCOLN MEDICAL CENTER

SOUTH LINCOLN MEDICAL CENTER

Since 2009, the COPD Learn More Breathe Better program has been working with partners on the ground to spread awareness and educate about COPD. The Breathe Better Network continues to grow:

We are very excited to welcome South Lincoln Medical Center as a Breathe Better Network partner. The hospital, clinic and nursing home provides patient education and conducts several events every year for individuals in the Kemmerer/ Diamondville area. Most recently, the organization conducted a health fair in the region and provided materials to more than 1,000 people in the area.

For more information on the organization, visit: www.southlincolnmedical.com. If you are interested in joining the Breathe Better Network email us at copd@porternovelli.com.

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We Want to Hear From You!

If there is an outstanding member of your team that you want to recognize, or if your organization is working on a project that you think should be included in the next COPD Learn More Breathe Better Update, we want to hear from you. Email us at NHLBIinfo@nhlbi.nih.gov and let us know what you're doing to raise COPD awareness.

And, if you weren't aware, the Campaign also has an updated Facebook pageimage of external icon where you can see new activity including videos from Breathe Better Network activity during National COPD Awareness Month. Check it out and become a fan of the Campaign's page.

That's not all! You can follow the Campaign @BreatheBetterimage of external icon on Twitter and join the conversation.