The NHLBI is pleased to work with others at the Department of Health and Human Services (HHS), including the National Institutes of Health (NIH), as well as other federal, state, and local government organizations to expand and improve care, early diagnosis, treatment, and research for sickle cell disease.
We collaborate with professional societies, such as the American Society of Hematology, which helps us connect to the many researchers and clinicians who are developing and testing new treatments and working toward curing sickle cell disease.
The NHLBI also partners with patient advocacy groups, including the Sickle Cell Disease Association of America and the Sickle Cell Community Consortium, as well as many others that are working to ensure that patients and their families have a voice in their health care and opportunities to help advance research.
Finally, our research collaborations are numerous. NIH is partnering with the Bill & Melinda Gates Foundation to develop affordable, gene-based cures for sickle cell disease and HIV. The intention is for these cures to be made globally available, including in low-resource settings. Learn more about this collaboration.
Other organizations, such as the California Institute for Regenerative Medicine, work with the NHLBI to explore the use of innovative technologies and therapies to advance cures for sickle cell disease.
Only by working together—across public and private sectors and research, medical, and patient communities—can we accelerate the development of cures, move current treatments and new therapies into health care practice, and improve the lives of people who have sickle cell disease.