Sickle Cell Disease Advisory Committee - Tentative Agenda, January 29, 2024



10:00am-10:15am: Welcome and General Introductions: (NHLBI leads, SCDAC Chair)

Julie Panepinto, MD., MSPH. Director, Division of Blood Diseases and Resources, NHLBI
Traci Mondoro, PhD, Chief, Translational Blood Sciences and Resource Branch, NHLBI
Juan Salomon, MS, PMP, Cure Sickle Cell Initiative Coordinator, NHLBI
Idalia Yabe, PhD, Program Officer, NHLBI
Marsha Treadwell J, PhD. University of California, San Francisco, CA, SCDAC Chair

10:15am-11:15am: NHLBI SCD Program Updates
Review NIH

  • NHLBI Clinical Trial mechanisms
  • Overview of Sickle Cell Programs including Updates on the Portfolio
  • Discussion

11:15am-11:25am: Break

11:25-1:00pm: Leveraging networks to conduct successful clinical trials in sickle cell disease:
11:25-11:35am:  Introduction to guest speakers from networks
11:35am-11:55pm: PECARN
11:55pm-12:15pm: NICHD neonatal network
12:15pm-12:35pm:  BMT CTN
12:35-1:00pm:  Q&A

1:00pm-1:30pm:  Lunch Break

1:30pm-2:50pm:  General Discussion & Committee Recommendations