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Sickle Cell in Focus Conference 2019

October 10 - 11 , 2019
Jamaica Pegasus Hotel
81 Knutsford Boulevard
Kingston 5, Jamaica West Indies

Description

After another successful event at the NIH/NHLBI, USA, in October 2018, we are pleased to announce that Sickle Cell in Focus (SCiF) will be held for the second-time in Kingston, Jamaica on October 10-11, 2019. The 13th annual SCiF conference will be co-hosted by the National Heart, Lung, and Blood Institute and The University of West Indies.

SCiF is a two-day, intensive, educational update on sickle cell disease. This year’s conference will focus updates on management of commonly encountered sickle-related complications, curative therapies, and a reality check on current treatment options- blood transfusion, hydroxyurea and L-glutamine. At the end of each day, there will also be two complex debates which focus on topical issues for which there is no clear answer.

This two-day intensive educational conference is geared towards clinicians, academics, and other healthcare professionals involved in sickle cell disease around the world.

To view the complete Event Program, click here.

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Agenda

8:00am
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Registration

9:00am
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Welcome and Introduction

9:15am - 10:45am
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SESSION ONE: SICKLE CELL DISEASE AROUND THE WORLD

9:15am - United States of America
Kathryn Hassell (Denver, Colorado, US)
Department of Medicine, Division of Hematology, University of Colorado Denver, USA

9:30am - The Caribbean
M. Hardy – Dessources, Guadeloupe
UMR_S 1134, Inserm/ Université des Antilles, CHU Pointe à Pitre, Guadeloupe

9:45am - Africa
J. Makani – Tanzania
Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania

10:00am - India
Dipty Jain
Indira Gandhi Government Medical College and Mayo Hospital, Nagpur, India

10:15am - Europe
Jacques Elion – France
Université Paris Diderot, Sorbonnne Paris Cité, France

10:30am - Brazil
Fernando Costa (UNICAMP)
Cidade Universitária Zeferino Vaz, Campinas, Brazil

10:45am - Discussion

11:00am
-
BREAK

11:25am - 12:15pm
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SESSION TWO: CAN WE CURE AND/OR PREVENT SICKLE CELL DISEASE

11:25am - Gene Editing and Gene Therapy
Punam Malik
Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA

11:55am - Source of Cells – Impact on Success of BMT
John Tisdale
National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA

12:15pm - Long Term Outcomes of BMT
Matt Hsieh
National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA

12:35pm
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LUNCH

1:35pm - 2:35pm
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SESSION THREE: DISEASE MODIFICATION OF SICKLE CELL DISEASE

1:35pm - HU Around the World – Africa, India, Caribbean, and Developed World
Russell Ware
Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA

2:05pm - Update on Clinical Trials
Matthew Heeney (Boston)
Boston Children’s Hospital, Boston, MA, USA

2:35pm - Experience with L-glutamine
Charles Quinn
Cincinnati Children’s Hospital, Cincinnati, OH, USA

2:50pm - 3:35pm
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SESSION FOUR: PROBLEMS IN MANAGING SICKLE CELL DISEASE

2:50pm - How I Manage Venous Thromboembolisms in SCD
Arun Shet
National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA

3:10pm - Opioid and Marijuana in SCD
Susanna Curtis
Yale School of Medicine, New Haven, CT, USA

3:35pm - Pain as a Complex Phenotype
Deepika Darbari
Children's National Medical Center, Washington DC, USA

4:00pm - 4:40pm
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SESSION FIVE: DEBATE: BLOOD TRANSFUSION IS UNDER UTILIZED FOR SICKLE-RELATED COMPLICATIONS?

4:00pm - YES: Ross Fasano
Emory University School of Medicine, Washington, DC

4:20pm - NO: Graham Serjeant
Sickle Cell Trust, Jamaica

4:40pm - Debate

5:00pm
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DAY ONE CLOSE

8:30am
-
Registration

9:00am
-
Welcome and Introduction

9:10am - 10:50am
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SESSION ONE: TRANSLATION OF RESEARCH INTO CLINICAL CARE

9:10am - CNS
Fenella Kirkham
UCL Great Ormond Street Institute of Child Health, Southampton, Hampshire, UK

9:35am - Respiratory Complications
Parker Ruhl
National Institute of Allergies and Infectious Diseases, Bethesda, MD, USA

10:00am - Cardiac Complications
Vandana Sachdev (NHLBI, US)
National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA

10:25am - Leg Ulcer
Caterina P. Minniti
Albert Einstein College of Medicine, Bronx, NY, USA

10:50am - Renal Complications
Claire Sharpe (KCL, UK)
King’s College London, London, UK

11:15am
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BREAK

11:35am
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SESSION TWO: OVERLOOKED BUT CRITICAL SPECIALTY AREAS IN SICKLE CELL DISEASE

11:35am - Psychology in SCD
Marsha Treadwell
UCSF Benioff Children's Hospital, Oakland, CA, USA

11:55pm - Orthopedics and SCD
Marcus Bankes (GSTT, London)
Guys and St Thomas’ Foundation NHS Trust, London, UK

12:15pm - Urology and SCD
Belinda Morrison
Department of Surgery, Radiology, Anaesthesia and Intensive Care, The University of the West Indies, Jamaica

12:35pm - Pregnancy and SCD
Monika Parshad-Asnani
The Caribbean Institute for Health Research, The Sickle Cell Unit, The University of the West Indies, Jamaica

12:55pm
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LUNCH

1:55pm - 2:40pm
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SESSION THREE: PUBLIC HEALTH ASPECTS OF SICKLE CELL DISEASE MANAGEMENT

1:55pm - Integration into PH in Developing Countries
Jennifer Knight-Madden
The Caribbean Institute for Health Research, The Sickle Cell Unit, The University of the West Indies, Jamaica

2:20pm - Insurance for Adults with SCD/Access
Katheryn Hassell (Denver, Colorado, US)
Colorado Sickle Cell Treatment and Research Center, University of Colorado, USA

2:40pm - Education of Health Care Professionals – ECHO
Rosalyn Stewart
Johns Hopkins Outpatient Center, Baltimore, USA

3:00pm - 3:40pm
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SESSION FOUR: DEBATE: PEOPLE WITH SCD SHOULD BE PRIMARILY CARED FOR BY HEMATOLOGISTS

3:00pm - YES: Swee Lay Thein (NHLBI, US)
National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA

3:20pm NO: Marvin Reid
The Caribbean Institute for Health Research, The Tropical Metabolism Research Unit, The University of the West Indies, Jamaica

3:40pm - Debate

4:00pm - 5:00pm
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SESSION FIVE: PANEL DISCUSSION: CARE AND RESEARCH FROM THE PATIENT PERSPECTIVE

4:00pm - Jamaica
Morette Wright

4:20pm - Trinidad & Tobago
Renee Esdaille
Secretary of the Society for Inherited and Severe Blood Disorders T&T Ltd.

4:40pm - United States
Howard Woolley
President and CEO, Howard Woolley Group
Author, "Soar"

5:00pm - Discussion

5:20pm
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CLOSE OF CONFERENCE