Description
After another successful event at the NIH/NHLBI, USA, in October 2018, we are pleased to announce that Sickle Cell in Focus (SCiF) will be held for the second-time in Kingston, Jamaica on October 10-11, 2019. The 13th annual SCiF conference will be co-hosted by the National Heart, Lung, and Blood Institute and The University of West Indies.
SCiF is a two-day, intensive, educational update on sickle cell disease. This year’s conference will focus updates on management of commonly encountered sickle-related complications, curative therapies, and a reality check on current treatment options- blood transfusion, hydroxyurea and L-glutamine. At the end of each day, there will also be two complex debates which focus on topical issues for which there is no clear answer.
This two-day intensive educational conference is geared towards clinicians, academics, and other healthcare professionals involved in sickle cell disease around the world.
To view the complete Event Program, click here.
Organizing Committee
Swee Lay Thein, M.D., DSc, National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA
John F. Tisdale, M.D., National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA
Jennifer Knight-Madden, M.B., B.S., Ph.D., Caribbean Institute for Health Research, University of the West Indies, Kingston, Jamaica
Monika Parshad-Asnani, M.B.B.S., D.M., Ph.D., Caribbean Institute for Health Research, University of the West Indies, Kingston, Jamaica
Contact Us
Please direct all conference questions to our general inbox SCiFConference@nhlbi.nih.gov to ensure a timely response. For more specific questions, you can contact the following people:
Program Contact
Swee Lay Thein, M.D.
sweelay.thein@nih.gov
John F. Tisdale, M.D.
john.tis@nhlbi.nih.gov
Jennifer Knight-Madden, MBBS, PhD
jennifer.knightmadden@uwimona.edu.jm
Monika Parshad-Asnani
monika.parshadasnani@uwimona.edu.jm
Meeting Logistics
Jessica Peterson
Jessica.Peterson2@nih.gov
Phone: 301-827-6630
Cassandra Wint-Rose
cassandra.wint@uwimona.edu.jm
Phone: 876-927-2984/977-0632
Meeting Venue
Jamaica Pegasus Hotel
81 Knutsford Boulevard
Kingston 5, Jamaica West Indies
Travel & Hotel Accommodations
Please visit our event page for information on hotel booking and travel.
Agenda
8:00am
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Registration
9:00am
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Welcome and Introduction
9:15am - 10:45am
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SESSION ONE: SICKLE CELL DISEASE AROUND THE WORLD
9:15am - United States of America
Kathryn Hassell (Denver, Colorado, US)
Department of Medicine, Division of Hematology, University of Colorado Denver, USA
9:30am - The Caribbean
M. Hardy – Dessources, Guadeloupe
UMR_S 1134, Inserm/ Université des Antilles, CHU Pointe à Pitre, Guadeloupe
9:45am - Africa
J. Makani – Tanzania
Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania
10:00am - India
Dipty Jain
Indira Gandhi Government Medical College and Mayo Hospital, Nagpur, India
10:15am - Europe
Jacques Elion – France
Université Paris Diderot, Sorbonnne Paris Cité, France
10:30am - Brazil
Fernando Costa (UNICAMP)
Cidade Universitária Zeferino Vaz, Campinas, Brazil
10:45am - Discussion
11:00am
-
BREAK
11:25am - 12:15pm
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SESSION TWO: CAN WE CURE AND/OR PREVENT SICKLE CELL DISEASE
11:25am - Gene Editing and Gene Therapy
Punam Malik
Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA
11:55am - Source of Cells – Impact on Success of BMT
John Tisdale
National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA
12:15pm - Long Term Outcomes of BMT
Matt Hsieh
National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA
12:35pm
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LUNCH
1:35pm - 2:35pm
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SESSION THREE: DISEASE MODIFICATION OF SICKLE CELL DISEASE
1:35pm - HU Around the World – Africa, India, Caribbean, and Developed World
Russell Ware
Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA
2:05pm - Update on Clinical Trials
Matthew Heeney (Boston)
Boston Children’s Hospital, Boston, MA, USA
2:35pm - Experience with L-glutamine
Charles Quinn
Cincinnati Children’s Hospital, Cincinnati, OH, USA
2:50pm - 3:35pm
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SESSION FOUR: PROBLEMS IN MANAGING SICKLE CELL DISEASE
2:50pm - How I Manage Venous Thromboembolisms in SCD
Arun Shet
National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA
3:10pm - Opioid and Marijuana in SCD
Susanna Curtis
Yale School of Medicine, New Haven, CT, USA
3:35pm - Pain as a Complex Phenotype
Deepika Darbari
Children's National Medical Center, Washington DC, USA
4:00pm - 4:40pm
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SESSION FIVE: DEBATE: BLOOD TRANSFUSION IS UNDER UTILIZED FOR SICKLE-RELATED COMPLICATIONS?
4:00pm - YES: Ross Fasano
Emory University School of Medicine, Washington, DC
4:20pm - NO: Graham Serjeant
Sickle Cell Trust, Jamaica
4:40pm - Debate
5:00pm
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DAY ONE CLOSE
8:30am
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Registration
9:00am
-
Welcome and Introduction
9:10am - 10:50am
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SESSION ONE: TRANSLATION OF RESEARCH INTO CLINICAL CARE
9:10am - CNS
Fenella Kirkham
UCL Great Ormond Street Institute of Child Health, Southampton, Hampshire, UK
9:35am - Respiratory Complications
Parker Ruhl
National Institute of Allergies and Infectious Diseases, Bethesda, MD, USA
10:00am - Cardiac Complications
Vandana Sachdev (NHLBI, US)
National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA
10:25am - Leg Ulcer
Caterina P. Minniti
Albert Einstein College of Medicine, Bronx, NY, USA
10:50am - Renal Complications
Claire Sharpe (KCL, UK)
King’s College London, London, UK
11:15am
-
BREAK
11:35am
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SESSION TWO: OVERLOOKED BUT CRITICAL SPECIALTY AREAS IN SICKLE CELL DISEASE
11:35am - Psychology in SCD
Marsha Treadwell
UCSF Benioff Children's Hospital, Oakland, CA, USA
11:55pm - Orthopedics and SCD
Marcus Bankes (GSTT, London)
Guys and St Thomas’ Foundation NHS Trust, London, UK
12:15pm - Urology and SCD
Belinda Morrison
Department of Surgery, Radiology, Anaesthesia and Intensive Care, The University of the West Indies, Jamaica
12:35pm - Pregnancy and SCD
Monika Parshad-Asnani
The Caribbean Institute for Health Research, The Sickle Cell Unit, The University of the West Indies, Jamaica
12:55pm
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LUNCH
1:55pm - 2:40pm
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SESSION THREE: PUBLIC HEALTH ASPECTS OF SICKLE CELL DISEASE MANAGEMENT
1:55pm - Integration into PH in Developing Countries
Jennifer Knight-Madden
The Caribbean Institute for Health Research, The Sickle Cell Unit, The University of the West Indies, Jamaica
2:20pm - Insurance for Adults with SCD/Access
Katheryn Hassell (Denver, Colorado, US)
Colorado Sickle Cell Treatment and Research Center, University of Colorado, USA
2:40pm - Education of Health Care Professionals – ECHO
Rosalyn Stewart
Johns Hopkins Outpatient Center, Baltimore, USA
3:00pm - 3:40pm
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SESSION FOUR: DEBATE: PEOPLE WITH SCD SHOULD BE PRIMARILY CARED FOR BY HEMATOLOGISTS
3:00pm - YES: Swee Lay Thein (NHLBI, US)
National Heart, Lung, and Blood Institute, National Institutes of Health, Bethesda, MD, USA
3:20pm NO: Marvin Reid
The Caribbean Institute for Health Research, The Tropical Metabolism Research Unit, The University of the West Indies, Jamaica
3:40pm - Debate
4:00pm - 5:00pm
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SESSION FIVE: PANEL DISCUSSION: CARE AND RESEARCH FROM THE PATIENT PERSPECTIVE
4:00pm - Jamaica
Morette Wright
4:20pm - Trinidad & Tobago
Renee Esdaille
Secretary of the Society for Inherited and Severe Blood Disorders T&T Ltd.
4:40pm - United States
Howard Woolley
President and CEO, Howard Woolley Group
Author, "Soar"
5:00pm - Discussion
5:20pm
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CLOSE OF CONFERENCE
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