NEWS & EVENTS
Sickle Cell Disease Forum
June 25 - 26, 2015
Thursday, June 25—NIH Clinical Center (Building 10), Masur Auditorium
Friday, June 26—Natcher Conference Center (Building 45)
Description

The National Heart, Lung, and Blood Institute (NHLBI) will host a Sickle Cell Disease Forum on June 25-26, 2015 at the National Institutes of Health (NIH) campus in Bethesda, MD.  The Forum is designed to bring together the sickle cell disease community—including patients and their families, advocates, health care professionals, researchers, community and professional organizations, policymakers, government agencies, industry, and the media—to help chart the future of sickle cell disease research.

Recap

Sickle Cell Disease Forum Engaging the Community: Developing Solutions

If you missed the Sickle Cell Disease Forum, watch it here.


Learn more about sickle cell disease and current research efforts of the NHLBI:

Explore Sickle Cell Disease

Spotlight on Research:  Reducing the Burden of Sickle Cell Disease

Sickle Cell Disease Guidelines

Clinical Trials


SCD Speaker Presentations

Panel #1: Sickle Cell Disease Research:  Past, Present, and Future

Panel #2: Managing Sickle Cell Disease Pain

Panel #3: Innovative Care Models

Agenda

11:00 AM – 5:00 PM
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Registration

12:00 PM – 1:30PM
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Welcome and Opening Remarks

Francis S. Collins, M.D., Ph.D. and Gary H. Gibbons, M.D.

Generating Hope for Sickle Cell Disease

Wayne A. I. Frederick, M.D., M.B.A., F.A.C.S.

Building Awareness for Sickle Cell Disease

Wanda Whitten-Shurney, M.D.

1:30 PM – 2:30 PM
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Panel #1: Sickle Cell Disease Research: Past, Present, and Future

W. Keith Hoots, M.D. (Chair)

Harvey Luksenburg, M.D.

Clarice Wills Reid, M.D., F.A.A.P.

2:30 PM – 2:45 PM
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Digital Engagement Break

2:45 PM – 3:45 PM
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Panel #2: Managing Sickle Cell Disease Pain

Wally R. Smith, M.D. (Chair)

Kalpna Gupta, Ph.D.

Ricardo A. Cruciani, M.D., Ph.D.

Carlton Haywood, Jr., Ph.D., M.A.

3:45PM – 4:00 PM
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Digital Engagement Break

4:00 PM – 5:00 PM
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Panel #3: Innovative Care Models

Sophie Lanzkron, M.D., M.H.S. (Chair)

Lewis Hsu, M.D., Ph.D.

Jeffrey Glassberg, M.D.

5:00 PM – 5:30 PM
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Digital Engagement Break, Tomorrow’s Review, Adjournment

8:00 AM – 4:00 PM
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Registration

9:00 AM – 9:20 AM
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Introduction to the Day

W. Keith Hoots, M.D.

Update from ASH

David A. Williams, M.D.

9:20 AM – 9:25 AM
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Transition Break

9:25AM –10:25AM
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Panel #4: Sickle Cell Disease Transitions

Julie Kanter-Washko, M.D. (Chair)

Brooke Allemang, M.S.W., R.S.W.

Christopher Patrick Carroll, M.D.

10:25 AM - 10:30AM
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Transition Break

10:30 AM – 11:30 AM
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Panel #5: Importance of Clinical Trials

Swee Lay Thein, M.D., F.R.C.P., F.R.C.Path., D.Sc. (Chair)

Kim Smith-Whitley, M.D.

John Tisdale, M.D.

11:30 AM –12:30 PM
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Lunch Break

12:30 PM - 1:30 PM
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Sickle Cell 101

12:30 PM - 1:30 PM
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Psychosocial Issues

12:30 PM - 1:30 PM
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Global Impact of Sickle Cell Disease Research

1:30 PM – 1:40 PM
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Digital Engagement Break

1:40 PM – 2:40 PM
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Sickle Cell 101

1:40 PM – 2:40 PM
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Making Connections and Sharing Knowledge

1:40 PM – 2:40 PM
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Psychosocial Issues

1:40 PM – 2:40 PM
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Global Impact of Sickle Cell Disease Research

2:40 PM - 2:50 PM
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Digital Engagement Break

2:50 PM – 3:50 PM
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Digital and Social Media Best Practices

2:50 PM – 3:50 PM
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Making Connections and Sharing Knowledge

2:50 PM – 3:50 PM
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Global Impact of Sickle Cell Disease Research

3:50 PM – 4:00 PM
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Digital Engagement Break

4:00 PM – 5:00 PM
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Digital and Social Media Best Practices

4:00 PM – 5:00 PM
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Psychosocial Issues

4:00 PM – 5:00 PM
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Making Connections and Sharing Knowledge

5:00 PM – 5:15 PM
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NHLBI Closing Remarks (within session)