National Commission on Lymphatic Diseases

NCLD

 Description

The National Commission on Lymphatic Diseases (NCLD) was formed to advance the understanding of lymphatic diseases and help improve the health and care of people living with them. The members of the commission represent a wide cross-section of the lymphatics community – patients who have lymphatic diseases, clinicians who treat the diseases, and researchers who study them. The focus of their research is broad, encompassing basic and translational research, imaging, biomarker exploration, surgical and clinical research, and physical therapy. This diversity ensures a comprehensive approach to addressing the challenges associated with lymphatic diseases.

The NCLD is administered by the National Heart, Lung, and Blood Institute (NHLBI), which serves as the convening body to coordinate the commission’s work on behalf of the NIH. The commission operates transparently and inclusively, considering a wide range of viewpoints and experiences from the community. The meetings are open to the public and include presentations and discussions surfacing opportunities aimed at accelerating scientific approaches that benefit patients and improve their care.

Committees

The NCLD members serving on the following committees work to define a vision for successful outcomes, along with a strategic approach that outlines an action framework for achieving their goals.

Scientific Advancement Committee
Educational Imperatives Committee
Measurable Results Committee
Patient Tools Committee
Third Party Coverage Committee
Community Growth Committee

Meetings and Materials

  • April 22, 2024
  • June 24, 2024
  • September 30, 2024

Roster

Stephanie Dreyer, M.B.A.
Patient Representative,
Vice Chair, Board of Directors,
The LAM Foundation 
Cincinnati, OH

Stanley G. Rockson, M.D.
Allan and Tina Neill Professor of Lymphatic Research and Medicine 
Director, Stanford Center for Lymphatic and Venous Disorders,

Chief of Consultative Cardiology, 
Falk Cardiovascular Research Center
Stanford University School of Medicine
Stanford, CA

Selen Catania, Ph.D.
Program Officer, Vascular Biology and Hypertension Branch
Division of Cardiovascular Diseases
National Heart, Lung, and Blood Institute
Bethesda, MD

Cynthia Hudson
Patient Representative
Bronx, NY

Alexa Ercolano
Patient Representative/Advocate, 
The Lymphie Life 
Baltimore, MD

Rebecca Fisher, Ph.D.
Patient Representative
Director of Anatomy, ASU Health
Professor, School of Life Sciences
Arizona State University 
Tempe, Arizona

Felicitie Daftuar, M.B.A.
Patient Representative
Founder, Lipedema Foundation
Greenwich, CT

Guillermo Oliver, Ph.D.
Director, Feinberg Cardiovascular & Renal Research Institute's Center for Vascular & Developmental Biology

Thomas D. Spies Professor of Lymphatic Metabolism,
Northwestern University
Feinberg School of Medicine
Chicago, IL

Jeffrey Iliff, Ph.D.
Associate Director for Research, 
VISN 20 Mental Illness Research, Education, and Clinical Center, 
VA Puget Sound Health Care System

Arthur J. and Marcella McCaffray Professor in Alzheimer’s Disease
Lead, UW Alzheimer’s Disease Research Center Research Education Component
Professor of Psychiatry and Behavioral Science
Professor of Neurology
University of Washington School of Medicine
Seattle, WA

Gwendalyn Randolph, Ph.D.
Emil R. Unanue Professor in Immunobiology
Department of Pathology & Immunology
Washington University School of Medicine
St. Louis, MO

Melissa B. Aldrich, Ph.D., M.B.A.
Associate Professor, IMM-Center for Molecular Imaging
The University of Texas Health Science Center at Houston
McGovern Medical School
Houston, TX

Paula Donahue, P.T., D.P.T, M.B.A., CLT-LANA
Associate Professor, Physical Medicine and Rehabilitation,
Vanderbilt Dayani Center Lymphedema Clinic 
Vanderbilt University Medical Center
Nashville, TN

Hasina Outtz Reed, M.D., Ph.D.
Assistant Professor of Medicine, 
James Hilton Manning and Emma Austin Manning Foundation

Research Scholar
Weill Cornell Medical College, Cornell University
New York, NY

Maxim Itkin, M.D.
Professor of Radiology, Hospital of the University of Pennsylvania

Director, Center for Lymphatic Imaging and Interventions
University of Pennsylvania Perelman School of Medicine
Hospital of the University of Pennsylvania
Philadelphia, PA

Timothy P. Padera, Ph.D.
Associate Professor of Radiation Oncology, 
Harvard Medical School

Rullo Family MGH Research Scholar, 
Edwin L. Steele Laboratories, 
Department of Radiation Oncology 
Massachusetts General Hospital
Boston, MA

Babak Mehrara, M.D.
Chief, Plastic and Reconstructive Surgery Service
Peter G. Cordeiro Endowed Chair, Department of Surgery 
Memorial Sloan Kettering Cancer Center
Chappaqua, NY