Alpha1, -Antitrypsin Deficiency Registry Data Collection Forms
Index of Forms

 

Record Format
1) Patient information PDF
2) Registry screening PDF
3) Initial visit part A PDF
4) Initial visit part B PDF
5) Pulmonary function PDF
6) Modifeid dyspnia index PDF
7) Follow-up visit form part A PDF
Follow-up visit form part B PDF
9) Drop-out/ death notification PDF
10) Final death notification PDF
11) Release of medical information PDF
12) Cause of death review PDF
13) Telephone contact folllow-up PDF
14) PFT retrospective data PDF
15) CC instruct. for the aug. therapy record PDF
16) Adverse reaction PDF
17) Data change PDF
18) Data query PDF
19) Pulmonary function test equipment PDF
20) Pulmonary function survey PDF
21) Lab results - normal ranges PDF
22) Quality control of PFT data PDF
23) Authorization PDF
24) Family relationship PDF
25) Organ transplantation PDF
26) Participant survey PDF

 






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