Alpha1, -Antitrypsin Deficiency Registry Data Collection Forms
Index of Forms
Record
Format
1) Patient information
PDF
2) Registry screening
PDF
3) Initial visit part A
PDF
4) Initial visit part B
PDF
5) Pulmonary function
PDF
6) Modifeid dyspnia index
PDF
7) Follow-up visit form part A
PDF
Follow-up visit form part B
PDF
9) Drop-out/ death notification
PDF
10) Final death notification
PDF
11) Release of medical information
PDF
12) Cause of death review
PDF
13) Telephone contact folllow-up
PDF
14) PFT retrospective data
PDF
15) CC instruct. for the aug. therapy record
PDF
16) Adverse reaction
PDF
17) Data change
PDF
18) Data query
PDF
19) Pulmonary function test equipment
PDF
20) Pulmonary function survey
PDF
21) Lab results - normal ranges
PDF
22) Quality control of PFT data
PDF
23) Authorization
PDF
24) Family relationship
PDF
25) Organ transplantation
PDF
26) Participant survey
PDF
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