FYI from the NHLBI Index

September 2005: Vol. 6, Issue 2
Constituents' Corner

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Sponsoring International Workshop

From Progeria Research Foundation

The fourth workshop sponsored by the Progeria Research Foundation (PRF) will be held in Boston, Massachusetts, on November 3-5, 2005. The PRF was founded in 1999 to discover the cause, treatment, and cure for Hutchinson-Gilford Progeria Syndrome ("the premature aging syndrome") and its aging-related disorders. The 2005 Workshop will consider research, based on the 2003 discovery of a key gene mutation, that has sought to define cellular and biochemical defects in Progeria cells and in mouse models for the disease. Presentations and posters will include reports on the reversal of the Progeria phenotype, the results of which, taken together with clinical natural history studies to be reported, are providing key information for planning clinical trials. Speakers will include Dr. Nabel and Dr. Francis Collins, Director, National Human Genome Research Institute. All interested scientists and physicians are welcome. For more information about the Workshop, contact Audrey Gordon, Executive Director, at agordon@progeriaresearch.org.

Submitted by Audrey Gordon, Progeria Research Foundation

Modified 9/20/05
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Celebrating Five Years of Progress

From Pulmonary Fibrosis Foundation

The Pulmonary Fibrosis Foundation is hosting An Evening of Recognition to celebrate five years of progress in the fight against pulmonary fibrosis on September 17, 2005, in Chicago, Illinois. The event is designed to raise awareness and funds to find a cure for the disease. For more information, contact the Foundation at 312-587-9272 or visit Pulmonary Fibrosis Foundation.

Additionally, the Foundation announces November as Pulmonary Fibrosis Month and November 22 as Pulmonary Fibrosis Day for the State of Illinois and is hoping to have the remaining 49 states adopt similar resolutions.

Submitted by Vakarie Roberts, Pulmonary Fibrosis Foundation

Modified 9/20/05
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Informing Health Professionals

From Scleroderma Foundation

The Scleroderma Foundation has dedicated a section of its Web site to helping physicians, nurses, and other health professionals locate resources for scleroderma and related conditions. It includes links to a comprehensive collection of articles and abstracts and a listing of continuing medical education activities to help health professionals stay abreast of current treatment strategies and research. For more information visit Scleroderma Foundation or call 800-722-4673.

Submitted by Carolyn Weller, Scleroderma Foundation
Modified 9/20/05
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Hosting the Boston Sleep Party

From Narcolepsy Network, Inc.

The Narcolepsy Network, Inc., is celebrating its 20th anniversary during its 2005 Annual Conference on November 11-13, 2005 in Boston, Massachusetts. Patients and their families will learn new approaches to living with narcolepsy and cataplexy, the latest information on drug therapies, and energy-enhancing techniques. For more information visit Narcolepsy Network, Inc. or call 888-292-6522.

Submitted by Eveline Honig, Narcolepsy Network, Inc.

Modified 9/20/05
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Raising Lymphatic System Awareness

From Lymphatic Research Foundation

The Lymphatic Research Foundation is delighted to note the publication of an article “Unlocking the Drains” in the July 2005 issue of Nature (Vol. 436, 28, pp. 456-58) that highlights the importance of the lymphatic system. It is rewarding to see efforts to raise awareness of the need for lymphatic research paying off. Visit the Lymphatic Research Foundation for more information.

Submitted by Wendy Chaite, Lymphatic Research Foundation

Modified 9/20/05
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