FYI from the NHLBI Index
February 2005: Vol. 5, Issue 3
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of the FYI from the NHLBI to NHLBI.Listens@nih.gov.
Conference to Focus on Common Themes in Rare Lung Disease Pathogenesis
From the Rare Lung Disease Consortium
The second annual Rare Lung Disease Consortium (RLDC) Conference will be held
in Cincinnati, Ohio, on April 8-10, 2005. The RLDC is a network of rare lung
diseases communities, including but not limited to lymphangioleiomyomatosis,
alpha 1 antitrypsin deficiency, pulmonary alveolar proteinosis, and pediatric
interstitial lung disease. Two additional research communities, representing
connective tissue disease-related interstitial lung disease and primary ciliary
diskinesia, will be joining the network this year. All RLDC groups will come
together to discuss common themes in rare lung disease pathogenesis, including
fibrosis, inflammation, protein misfolding, and autoimmunity. All interested
physicians and scientists are welcomed. For more information about the conference
and abstract submission, please contact Bethany Barnett at 305-567-9888, Ext.
237, or via e-mail at firstname.lastname@example.org.
Submitted by Sue Byrnes, Director, The LAM Foundation
Free Allergic Asthma for Dummies by William E. Berger, MD
From the Allergy & Asthma Network Mothers of Asthmatics
Free help for those struggling with allergic asthma is on the way from Allergy
& Asthma Network Mothers of Asthmatics (AANMA) — in the form of Allergic
Asthma for Dummies by William E. Berger, MD. This 48-page mini-book features
step-by-step allergic asthma management strategies, as well as information on
how to recognize symptoms, avoid triggers, and create an effective management
plan. And AANMA brings it to you free of charge. To order copies, call 800-878-4403
or visit Breatherville.
Submitted by Grace Paine Terzian, Director of Communications, AANMA
Web Site and Online Column Provide Information on Lung Health
The American Association for Respiratory Care (AARC) recently launched a new
consumer Web site, www.YourLungHealth.org.
The site provides information on diseases and conditions that affect the respiratory
system, such as alpha 1 antitrypsin deficiency, asthma, chronic obstructive
pulmonary disease (COPD), cystic fibrosis, and sleep apnea.
Featured on the Web site is “Ask Dr. Tom,” the online column of
Thomas L. Petty, MD. Dr. Petty has devoted his career to helping patients who
have emphysema and other forms of COPD. In his column, Dr. Petty will engage
in an active dialog with patients and answer their questions in a concise and
clear manner, so that patients can learn more about the importance of maintaining
lung health. To submit a question to “Ask Dr. Tom” or to see answers
to other patients’ questions, visit "Ask
Submitted by Sherry Milligan, Associative Executive Director, AARC
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