Agenda

Thursday, June 3, 2010
Friday, June 4, 2010


Thursday, June 3, 2010


8:30 – 8:40 a.m. Welcome and Introduction
Susan B. Shurin, M.D., National Heart, Lung, and Blood Institute
8:40 – 9:00 a.m. Overview and Objectives
Kwaku Ohene-Frempong, M.D., Children’s Hospital of Philadelphia
9:00 – 11:00 a.m. Sudden Death in Sickle Cell Trait: What Is the Evidence?
Moderator: Martin Steinberg, M.D., Boston University
9:00 – 9:05 a.m. Introduction to Topics and Speakers
9:05 – 9:45 a.m. Insights Into Sudden Cardiac Death in Young People
Ronn E. Tanel, M.D., University of California, San Francisco
9:45 – 11:00 a.m. Exercise and Sudden Death: Investigations in SCT
John Kark, M.D., Thomas Jefferson University
Randy Eichner, M.D., University of Oklahoma
Patricia A. Deuster, Ph.D., Uniformed Services University of the Health Sciences
11:00 – 11:15 a.m. Break
11:15 a.m. – 12:15 p.m. Panel Discussion: Sudden Death in Student Athletes, Research Opportunities
Moderator: Martin Steinberg, M.D., Boston University
12:15 – 1:15 p.m. Lunch (on your own)
1:15 – 1:45 p.m. Summary of the Annual Sickle Cell Disease Scientific Meeting, Hollywood, FL (February 16-19, 2010)
Lanetta Jordan, M.D., M.P.H., M.S.P.H., Sickle Cell Disease Association of America
  Summary of the Scientific and Public Health Implications of Sickle Cell Trait Meeting, Atlanta, GA (December 17, 2009)
Althea Grant, Ph.D., Centers for Disease Control and Prevention
1:45 – 2:45 p.m. Ethical, Legal and Social Implications of Sickle Cell Trait Screening Programs
Moderator: Allan Noonan, M.D., M.P.H, Morgan State University
  Carlton Haywood Jr., Ph.D., Johns Hopkins University
Vence Bonham, J.D., National Human Genome Research Institute
Charmaine D. M. Royal, Ph.D., Duke University
2:45 – 3:00 p.m. Break
3:00 – 4:00 p.m. Societal Implications for Public Health
James Eckman, M.D., Emory University
Joseph Telfair, Ph.D., University of North Carolina, Greensboro
Michele Lloyd-Puryear, M.D., Ph.D., Health Resources and Services Administration
4:00 – 5:00 p.m. Panel Discussion: Research Questions Raised by Screening Programs and the Public Health Approach
Moderator: Allan Noonan, M.D., M.P.H, Morgan State University
5:00 p.m. Adjourn


Friday, June 4, 2010

8:00 – 9:15 a.m. Medical Knowledge Base for Sickle Cell Trait
Moderator: Clint Joiner, M.D., Ph.D., University of Cincinnati
  Coagulation and Thrombosis
Nigel Key, M.B., Ch.B., University of North Carolina
  Obstetrics and Gynecological Perspectives
Kathryn Hassell, M.D., University of Colorado
  Nephrology Perspectives Including Malignancy
Abhijit Kshirsagar, M.D., University of North Carolina
  Other Potential Manifestations
Kim Smith-Whitley, M.D., Children’s Hospital of Philadelphia
9:15 – 10:15 a.m. Panel Discussion: Opportunities To Improve the Quality of Evidence for the Medical Knowledge Base
Moderator: Clint Joiner, M.D., Ph.D., University of Cincinnati
10:15 – 10:30 a.m. Break
10:30 – 11:30 a.m. Breakout Groups
  Sudden Death in SCT: Would a Large Epidemiologic Study Provide Useful Information?
Leader: Kwaku Ohene-Frempong, M.D., Children’s Hospital of Philadelphia
  Bioethical Issues in SCT – What Research Is Needed?
Leader: Vence Bonham, J.D., National Human Genome Research Institute
  Medical Knowledge Base: What Are the Gaps in Knowledge?
Leader: Gregory J. Kato, M.D., National Heart, Lung, and Blood Institute
11:30 a.m. – 12:30 p.m. Reports of the Breakout Groups
12:30 – 1:00 p.m. Summary and Closing Remarks
Kwaku Ohene-Frempong, M.D., Children’s Hospital of Philadelphia







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