Agenda

Thursday, June 3, 2010
Friday, June 4, 2010

Thursday, June 3, 2010

8:30 – 8:40 a.m.	Welcome and Introduction Susan B. Shurin, M.D., National Heart, Lung, and Blood Institute
8:40 – 9:00 a.m.	Overview and Objectives Kwaku Ohene-Frempong, M.D., Children’s Hospital of Philadelphia
9:00 – 11:00 a.m.	Sudden Death in Sickle Cell Trait: What Is the Evidence? Moderator: Martin Steinberg, M.D., Boston University
9:00 – 9:05 a.m.	Introduction to Topics and Speakers
9:05 – 9:45 a.m.	Insights Into Sudden Cardiac Death in Young People Ronn E. Tanel, M.D., University of California, San Francisco
9:45 – 11:00 a.m.	Exercise and Sudden Death: Investigations in SCT John Kark, M.D., Thomas Jefferson University Randy Eichner, M.D., University of Oklahoma Patricia A. Deuster, Ph.D., Uniformed Services University of the Health Sciences
11:00 – 11:15 a.m.	Break
11:15 a.m. – 12:15 p.m.	Panel Discussion: Sudden Death in Student Athletes, Research Opportunities Moderator: Martin Steinberg, M.D., Boston University
12:15 – 1:15 p.m.	Lunch (on your own)
1:15 – 1:45 p.m.	Summary of the Annual Sickle Cell Disease Scientific Meeting, Hollywood, FL (February 16-19, 2010) Lanetta Jordan, M.D., M.P.H., M.S.P.H., Sickle Cell Disease Association of America
	Summary of the Scientific and Public Health Implications of Sickle Cell Trait Meeting, Atlanta, GA (December 17, 2009) Althea Grant, Ph.D., Centers for Disease Control and Prevention
1:45 – 2:45 p.m.	Ethical, Legal and Social Implications of Sickle Cell Trait Screening Programs Moderator: Allan Noonan, M.D., M.P.H, Morgan State University
	Carlton Haywood Jr., Ph.D., Johns Hopkins University Vence Bonham, J.D., National Human Genome Research Institute Charmaine D. M. Royal, Ph.D., Duke University
2:45 – 3:00 p.m.	Break
3:00 – 4:00 p.m.	Societal Implications for Public Health James Eckman, M.D., Emory University Joseph Telfair, Ph.D., University of North Carolina, Greensboro Michele Lloyd-Puryear, M.D., Ph.D., Health Resources and Services Administration
4:00 – 5:00 p.m.	Panel Discussion: Research Questions Raised by Screening Programs and the Public Health Approach Moderator: Allan Noonan, M.D., M.P.H, Morgan State University
5:00 p.m.	Adjourn

Friday, June 4, 2010

8:00 – 9:15 a.m.	Medical Knowledge Base for Sickle Cell Trait Moderator: Clint Joiner, M.D., Ph.D., University of Cincinnati
	Coagulation and Thrombosis Nigel Key, M.B., Ch.B., University of North Carolina
	Obstetrics and Gynecological Perspectives Kathryn Hassell, M.D., University of Colorado
	Nephrology Perspectives Including Malignancy Abhijit Kshirsagar, M.D., University of North Carolina
	Other Potential Manifestations Kim Smith-Whitley, M.D., Children’s Hospital of Philadelphia
9:15 – 10:15 a.m.	Panel Discussion: Opportunities To Improve the Quality of Evidence for the Medical Knowledge Base Moderator: Clint Joiner, M.D., Ph.D., University of Cincinnati
10:15 – 10:30 a.m.	Break
10:30 – 11:30 a.m.	Breakout Groups
	Sudden Death in SCT: Would a Large Epidemiologic Study Provide Useful Information? Leader: Kwaku Ohene-Frempong, M.D., Children’s Hospital of Philadelphia
	Bioethical Issues in SCT – What Research Is Needed? Leader: Vence Bonham, J.D., National Human Genome Research Institute
	Medical Knowledge Base: What Are the Gaps in Knowledge? Leader: Gregory J. Kato, M.D., National Heart, Lung, and Blood Institute
11:30 a.m. – 12:30 p.m.	Reports of the Breakout Groups
12:30 – 1:00 p.m.	Summary and Closing Remarks Kwaku Ohene-Frempong, M.D., Children’s Hospital of Philadelphia

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