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NHLBI-Related Public Interest Organizations

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Focus of Organization: Cardiovascular Diseases | Lung Diseases | Blood Diseases and Resources | Sleep Disorders | Other Public Interest Organizations


Organizations Focusing on Cardiovascular Diseases

Adult Congenital Heart Associationimage of external icon

American Heart Associationimage of external icon

Cardiac Arrhythmias Research and Education (C.A.R.E.) Foundation, Inc.image of external icon

CFC Internationalimage of external icon (cardio-facio-cutaneous syndrome)

Children's Cardiomyopathy Foundationimage of external icon

Children's Heart Foundationimage of external icon

Churg Strauss Syndrome Associationimage of external icon

Congenital Heart Information Network (C.H.I.N.)image of external icon

HELLP Syndrome Society, Inc.image of external icon

It's My Heartimage of external icon

Kawasaki Disease Foundationimage of external icon

Kids With Heartimage of external icon

Mended Hearts, Inc.image of external icon

National Stroke Associationimage of external icon

Parent Heart Watchimage of external icon

Preeclampsia Foundationimage of external icon

Sudden Arrhythmia Death Syndromes (SADS) Foundationimage of external icon

Sudden Cardiac Arrest Associationimage of external icon

Sudden Cardiac Arrest Foundationimage of external icon

Vascular Disease Foundationimage of external icon

WomenHeart: the National Coalition for Women with Heart Diseaseimage of external icon


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Organizations Focusing on Lung Diseases

Allergy and Asthma Network - Mothers of Asthmatics, Inc.image of external icon

Alpha 1 Advocacy Allianceimage of external icon

Alpha 1 Associationimage of external icon

Alpha 1 Foundationimage of external icon

American Association for Respiratory Care (AARC) Consumer Roundtableimage of external icon

American Lung Associationimage of external icon

ARDS Foundationimage of external icon (acute respiratory distress syndrome)

Asthma and Allergy Foundation of Americaimage of external icon

Central Indiana Sarcoidosis Support Group

Children's Interstitial Lung Disease (ChILD) Foundationimage of external icon

Coalition for Pulmonary Fibrosisimage of external icon

COPD Foundationimage of external icon (chronic obstructive pulmonary disease)

COPD Internationalimage of external icon (chronic obstructive pulmonary disease)

COPD-Alertimage of external icon (chronic obstructive pulmonary disease)

Cystic Fibrosis Foundationimage of external icon

Emphysema Foundation for our Right to Survive (EFFORTS)image of external icon

Foundation for Sarcoidosis Researchimage of external icon

LAM Foundationimage of external icon (lymphangioleiomyomatosis)

LAM Treatment Allianceimage of external icon (lymphangioleiomyomatosis)

Let's Breath Sarcoidosis Supportimage of external icon

National Emphysema/COPD Association (NECA)image of external icon

National Sarcoidosis Networking Society

National Sarcoidosis Resource Centerimage of external icon

Nontuberculous Mycobacteria Information and Research, Inc.image of external icon

PCD Foundationimage of external icon (primary ciliary dyskinesia)

Pulmonary Fibrosis Foundationimage of external icon

Pulmonary Hypertension Association, Inc.image of external icon

Sarcoid Networking Associationimage of external icon

Sarcoidosis Awareness Network

Sarcoidosis Network Foundation, Inc.image of external icon

Sarcoidosis of the Midlands of South Carolina

Sarcoidosis Research Instituteimage of external icon

Sarcoidosis Research Support Group

 

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Organizations Focusing on Blood Diseases and Resources

Aplastic Anemia and MDS International Foundation, Inc.image of external icon (bone marrow diseases)

Cooley's Anemia Foundation, Inc.image of external icon (thalassemia)

Daniella Maria Arturi Foundationimage of external icon (Diamond-Blackfan anemia)

Familial TTP Foundationimage of external icon (thrombotic thrombocytopenic purpura)

Fanconi Anemia Research Fund, Inc.image of external icon

Hemophilia Federation of Americaimage of external icon

HHT Foundation International, Inc.image of external icon (hereditary hemorrhagic telangiectasia, Osler Weber Rendu syndrome)

Histiocytosis Association of Americaimage of external icon

Iron Disorders Instituteimage of external icon

National Alliance for Thrombosis and Thrombophilia (NATT)image of external icon

National Anemia Action Council image of external icon

National Hemophilia Foundationimage of external icon

Neutropenia Support Association, Inc.image of external icon

Platelet Disorder Support Associationimage of external icon

Sickle Cell Disease Association of America, Inc.image of external icon

 

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Organizations Focusing on Sleep Disorders

American Sleep Apnea Associationimage of external icon

First Candle/SIDS Allianceimage of external icon

Narcolepsy Network, Inc.image of external icon

National Sleep Foundationimage of external icon

Restless Legs Syndrome Foundationimage of external icon

Wake Up Narcolepsyimage of external icon

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Other Public Interest Organizations

American Autoimmune Related Diseases Associationimage of external icon

APS Foundation of America, Inc.image of external icon(antiphospholipid antibody syndrome)

Barth Syndrome Foundation, Inc.image of external icon

Caring Voice Coalition, Inc.image of external icon

CFIDS Association of America, Inc.image of external icon (chronic fatigue and immune dysfunction syndrome)

Hermansky-Pudlak Syndrome Network, Inc.image of external icon

Klippel-Trenaunay Support Groupimage of external icon

Lymphangiomatosis & Gorham's Disease Allianceimage of external icon

Lymphatic Education & Research Network (LE&RN)image of external icon

Malignant Hyperthermia Association of the United States (MHAUS)image of external icon

National Foundation for Transplantsimage of external icon

National Lymphedema Network, Inc.image of external icon

National Marfan Foundationimage of external icon

Noonan Syndrome Support Group, Inc.image of external icon

Parent Project Muscular Dystrophyimage of external icon

Pediatric/Adolescent Gastroesophageal Reflux Association (PAGER)image of external icon

Progeria Research Foundation, Inc.image of external icon

PXE International, Inc.image of external icon (pseudoxanthoma elasticum)

Scleroderma Foundationimage of external icon

TOPS Club, Inc.image of external icon (Take Off Pounds Sensibly)

Tuberous Sclerosis Allianceimage of external icon

United Mitochondrial Disease Foundationimage of external icon

Vasculitis Foundationimage of external icon

 

 

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Last Updated July 2012

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