Sep 2, 2011
In this video—presented by the National Heart, Lung, and Blood Institute, part of the National Institutes of Health—Nicholas and his mother, Bridget, talk about life with sickle cell disease. Nicholas was diagnosed with sickle cell disease soon after he was born. He suffered from hand-foot syndrome as a baby and had his gallbladder and spleen removed at age 5.
Penicillin, hydroxyurea, and other medicines have helped Nicholas and his family manage the illness and the severe pain crises that can result in hospital stays. Now a teenager, Nicholas enjoys going to school, taking part in sports, and hanging out with friends.
For more information about living with and managing sickle cell disease, go to the Health Topics Sickle Cell Anemia article.