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Living With Vasculitis

The outcome of vasculitis is hard to predict. It will depend on the type of vasculitis you have, which organs are affected, and the severity of the condition.

If vasculitis is diagnosed early and responds well to treatment, it may go away or go into remission. "Remission" means the condition isn't active, but it can come back, or "flare," at any time.

Flares can be hard to predict. You may have a flare when you stop treatment or change your treatment. Some types of vasculitis seem to flare more often than others. Also, some people have flares more often than others.

Sometimes vasculitis is chronic (ongoing) and never goes into remission. Long-term treatment with medicines often can control chronic vasculitis, but no cure has been found. Rarely, vasculitis doesn't respond well to treatment. This can lead to disability or even death.

Ongoing Care

The medicines used to treat vasculitis can have side effects. For example, long-term use of corticosteroids may lead to weight gain, diabetes, weakness, a decrease in muscle size, and osteoporosis (a bone-thinning condition). Long-term use of these medicines also may increase your risk of infection.

Your doctor may adjust the type or dose of medicine you take to lessen or prevent the side effects. If your vasculitis goes into remission, your doctor may carefully withdraw your medicines. However, he or she will still need to carefully watch you for flares.

While you're being treated for vasculitis, you'll need to see your doctor regularly. Talk with your doctor about any new symptoms and other changes in your health, including side effects of your medicines.

Emotional Issues and Support

Living with a chronic condition may cause fear, anxiety, depression, and stress. Talk about how you feel with your health care team. Talking to a professional counselor also can help. If you’re very depressed, your doctor may recommend medicines or other treatments that can improve your quality of life.

Joining a patient support group may help you adjust to living with vasculitis. You can see how other people who have the same symptoms have coped with them. Talk with your doctor about local support groups or check with an area medical center.

Support from family and friends also can help relieve stress and anxiety. Let your loved ones know how you feel and what they can do to help you.

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Last Updated: September 23, 2014