Living with narcolepsy can be hard. It can affect your ability to drive, work, go to school, and have relationships. Besides taking medicine, you can do many things to live a safe and fulfilling life.
Driving can be dangerous for people who have narcolepsy. Ask your doctor whether you can drive safely. To help make it safer for you to drive:
- Take naps before driving. This helps some people who have periods of extreme daytime sleepiness.
- Stop often during long drives. Stretch and walk around during the stops.
- Try to have family, friends, or coworkers in the car to keep you aware and engaged, or get rides from them.
People who have narcolepsy can work in almost any type of job, but some jobs may be better than others.
For example, a job with a flexible work schedule can make it easier to take naps when needed. A job in which you interact with your coworkers can help keep you awake. Jobs that don't require you to drive or are closer to home also may better suit your needs.
Certain laws may apply to workers who have medical conditions, such as narcolepsy. These laws include the:
- Americans with Disabilities Act (ADA). This law requires employers to reasonably accommodate the needs of their workers who have disabilities. This includes people who have narcolepsy. For example, employers may allow workers to take short naps during the workday or adjust work schedules to avoid sleepy periods.
- Family and Medical Leave Act. This law requires employers who have 50 or more employees to provide unpaid leave to employees who have an illness, such as narcolepsy. This law also gives leave to family members who need time to care for a close relative who has a serious illness.
- Social Security Disability Insurance or Supplemental Security Income programs. These programs may offer financial help if you can't work because of your narcolepsy.
Emotional Issues and Support
Living with narcolepsy may cause fear, anxiety, depression, and stress. Talk about how you feel with your health care team. Talking to a professional counselor also can help. If you're very depressed, your doctor may recommend medicines or other treatments that can improve your quality of life.
Joining a patient support group may help you adjust to living with narcolepsy. You can see how other people who have the same symptoms have coped with them. Talk with your doctor about local support groups or check with an area medical center.
Support from family and friends also can help relieve stress and anxiety. Let your loved ones know how you feel and what they can do to help you.
Narcolepsy in Special Groups
Children who have narcolepsy may have trouble studying, focusing, and remembering things. To help your child in school:
- Talk with your child's teachers and school officials about your child's narcolepsy and the best ways to meet his or her needs. For example, your child may need to take naps or walks during the day or tape the teacher's lessons.
- Talk with the school nurse about your child's narcolepsy and medicines. Together you can work out a place to keep the medicines and a schedule for taking them at school.
If you're pregnant or planning a pregnancy, ask your doctor whether you should continue taking your narcolepsy medicines. Certain medicines may interfere with your pregnancy.
Dr. Emmanuel Mignot talks about advances in narcolepsy research and care03/07/2013
Dr. Michael Twery, director of the National Center on Sleep Disorders Research in the NHLBI's Division of Lung Diseases, interviews Dr. Emmanuel Mignot, director of the Stanford Center for Sleep Sciences and Medicine and the Stanford Center for Narcolepsy, about advances in narcolepsy research.
An NHLBI grantee, Dr. Mignot is credited with discovering the cause of narcolepsy—a disorder that causes periods of extreme daytime sleepiness. There is no known cure, but the NHLBI is committed to supporting research to better understand, treat, and even prevent or cure narcolepsy as well as other heart, lung, blood, and sleep disorders.