What Is Cardiomyopathy?
Cardiomyopathy (KAR-de-o-mi-OP-a-the) refers to
diseases of the heart muscle. These diseases have a variety of causes,
symptoms, and treatments.
In cardiomyopathy, the heart muscle becomes
enlarged, thick, or rigid. In rare cases, the muscle tissue in the heart is
replaced with scar tissue.
As cardiomyopathy worsens, the heart becomes weaker.
It's less able to pump blood through the body and maintain a normal electrical
rhythm. This can lead to
heart
failure or
arrhythmia
(ah-RITH-me-ah). In turn, heart failure can cause fluid to build up in the
lungs, ankles, feet, legs, or abdomen.
The weakening of the heart also can cause other
severe complications, such as
heart
valve problems.
Overview
The four main types of cardiomyopathy are:
- Dilated cardiomyopathy
- Hypertrophic (hi-per-TROF-ik) cardiomyopathy
- Restrictive cardiomyopathy
- Arrhythmogenic (a-rith-mo-JEN-ik) right
ventricular dysplasia (ARVD)
The different types of the disease have different
causes, signs and symptoms, and outcomes.
Cardiomyopathy can be acquired or inherited.
"Acquired" means you aren't born with the disease but you develop it due to
another disease, condition, or factor. "Inherited" means your parents passed
the gene for the disease on to you. In many cases, the cause of cardiomyopathy
isn't known.
Cardiomyopathy can affect people of all ages.
However, certain age groups are more likely to have certain types of
cardiomyopathy. This article focuses on cardiomyopathy in adults.
Outlook
Some people who have cardiomyopathy have no signs or
symptoms and need no treatment. For other people, the disease develops rapidly,
symptoms are severe, and serious complications occur.
Treatments for cardiomyopathy include lifestyle
changes, medicines, surgery, implanted devices to correct arrhythmias, and a
nonsurgical procedure. These treatments can control symptoms, reduce
complications, and stop the disease from getting worse.
Types of Cardiomyopathy
Dilated Cardiomyopathy
Dilated cardiomyopathy is the most common type of
the disease. It mostly occurs in adults aged 20 to 60. Men are more likely than
women to have this type of cardiomyopathy.
Dilated cardiomyopathy affects the heart's
ventricles (VEN-trih-kuls) and atria (AY-tree-uh). These are the lower and
upper chambers of the heart, respectively.
The disease often starts in the left ventricle, the
heart's main pumping chamber. The heart muscle begins to dilate (stretch and
become thinner). This causes the inside of the chamber to enlarge. The problem
often spreads to the right ventricle and then to the atria as the disease gets
worse.
When the chambers dilate, the heart muscle doesn't
contract normally. Also, the heart can't pump blood very well. Over time, the
heart becomes weaker and
heart
failure can occur. Symptoms of heart failure include fatigue (tiredness);
swelling of the ankles, feet, legs, and abdomen; and shortness of breath.
Dilated cardiomyopathy also can lead to
heart
valve problems,
arrhythmias,
and blood clots in the heart.
Hypertrophic Cardiomyopathy
Hypertrophic cardiomyopathy is very common and can
affect people of any age. About 1 out of every 500 people has this type of
cardiomyopathy. It affects men and women equally. Hypertrophic cardiomyopathy
is the most common cause of
sudden
cardiac arrest (SCA) in young people, including young athletes.
This type of cardiomyopathy occurs when the walls of
the ventricles (usually the left ventricle) thicken. Despite this thickening,
the ventricle size often remains normal.
Hypertrophic cardiomyopathy may block blood flow out
of the ventricle. When this happens, the condition is called obstructive
hypertrophic cardiomyopathy. In some cases, the septum thickens and bulges into
the left ventricle. (The septum is the wall that divides the left and right
sides of the heart.) In both cases, blood flow out of the left ventricle is
blocked.
As a result of the blockage, the ventricle must work
much harder to pump blood out to the body. Symptoms can include chest pain,
dizziness, shortness of breath, or fainting.
Hypertrophic cardiomyopathy also can affect the
heart's mitral (MI-trul) valve, causing blood to leak backward through the
valve.
Sometimes the thickened heart muscle doesn't block
blood flow out of the left ventricle. This is called nonobstructive
hypertrophic cardiomyopathy. The entire ventricle may become thicker, or the
thickening may happen only at the bottom of the heart. The right ventricle also
may be affected.
In both types (obstructive and nonobstructive), the
thickened muscle makes the inside of the left ventricle smaller, so it holds
less blood. The walls of the ventricle also may stiffen. As a result, the
ventricle is less able to relax and fill with blood.
These changes cause increased blood pressure in the
ventricles and the blood vessels of the lungs. Changes also occur to the cells
in the damaged heart muscle. This may disrupt the heart's electrical signals
and lead to arrhythmias.
Rarely, people who have hypertrophic cardiomyopathy
have no signs or symptoms, and the condition doesn't affect their lives. Others
have severe symptoms and complications, such as serious arrhythmias, an
inability to exercise, or extreme fatigue with little physical activity.
Rarely, people who have this type of cardiomyopathy
can have SCA during very vigorous physical activity. The physical activity can
trigger dangerous arrhythmias. If you have this type of cardiomyopathy, talk to
your doctor about what types and amounts of physical activity are safe for you.
Restrictive Cardiomyopathy
Restrictive cardiomyopathy tends to mostly affect
older adults. In this type of the disease, the ventricles become stiff and
rigid. This is due to abnormal tissue, such as scar tissue, replacing the
normal heart muscle.
As a result, the ventricles can't relax normally and
fill with blood, and the atria become enlarged. Over time, blood flow in the
heart is reduced. This can lead to problems such as heart failure or
arrhythmias.
Arrhythmogenic Right Ventricular Dysplasia
Arrhythmogenic right ventricular dysplasia (ARVD) is
a rare type of cardiomyopathy. ARVD occurs when the muscle tissue in the right
ventricle dies and is replaced with scar tissue.
This process disrupts the heart's electrical signals
and causes arrhythmias. Symptoms include
palpitations
and fainting after physical activity.
ARVD usually affects teens or young adults. It can
cause SCA in young athletes. Fortunately, such deaths are rare.
Other Names for Cardiomyopathy
Other Names for Dilated Cardiomyopathy
- Alcoholic cardiomyopathy. This term is used when
overuse of alcohol causes the disease.
- Congestive cardiomyopathy.
- Diabetic cardiomyopathy.
- Familial dilated cardiomyopathy.
- Idiopathic cardiomyopathy.
- Ischemic cardiomyopathy. This term is used when
coronary
artery disease or
heart
attack causes the disease.
- Peripartum cardiomyopathy. This term is used when
the disease develops in a woman shortly before or after she gives birth.
- Primary cardiomyopathy.
Other Names for Hypertrophic Cardiomyopathy
- Asymmetric septal hypertrophy
- Familial hypertrophic cardiomyopathy
- Hypertrophic nonobstructive cardiomyopathy
- Hypertrophic obstructive cardiomyopathy
- Idiopathic hypertrophic subaortic stenosis
Other Names for Restrictive Cardiomyopathy
- Infiltrative cardiomyopathy
Other Names for Arrhythmogenic Right Ventricular
Dysplasia
- Arrhythmogenic right ventricular
cardiomyopathy
- Right ventricular cardiomyopathy
- Right ventricular dysplasia
What Causes Cardiomyopathy?
Cardiomyopathy can be acquired or inherited.
"Acquired" means you aren't born with the disease, but you develop it due to
another disease, condition, or factor.
"Inherited" means your parents passed the gene for
the disease on to you. Researchers continue to look for the genetic links to
cardiomyopathy. They also continue to explore how these links cause or
contribute to the various types of cardiomyopathy.
Many times, the cause of cardiomyopathy isn't known.
This is often the case when the disease occurs in children.
Dilated Cardiomyopathy
In more than half of the cases of dilated
cardiomyopathy, the cause isn't known. As many as one-third of the people who
have dilated cardiomyopathy inherit it from their parents.
Certain diseases, conditions, and substances also
can cause the disease, such as:
- Coronary
artery disease,
heart
attack, diabetes, thyroid disease, viral hepatitis, and HIV
- Infections, especially viral infections that
inflame the heart muscle
- Alcohol, especially if you also have a poor
diet
- Complications during the last month of pregnancy
or within 5 months of birth
- Certain toxins, such as cobalt
- Certain drugs (such as cocaine and amphetamines)
and two medicines used to treat cancer (doxorubicin and daunorubicin)
Hypertrophic Cardiomyopathy
Most cases of hypertrophic cardiomyopathy are
inherited. It also can develop over time because of
high
blood pressure or aging.
Sometimes, other diseases, such as diabetes or
thyroid disease, can cause hypertrophic cardiomyopathy. Sometimes the cause of
hypertrophic cardiomyopathy isn't known.
Restrictive Cardiomyopathy
Certain diseases and conditions can cause
restrictive cardiomyopathy, including:
-
Hemochromatosis
(HE-mo-kro-ma-TO-sis). This is a disease in which too much iron builds up in
your body. The extra iron is toxic to the body and can damage the organs,
including the heart.
- Sarcoidosis
(sar-koy-DO-sis). This is a disease that causes inflammation (swelling). It can
affect various organs in the body. The swelling is due to an abnormal immune
response. This abnormal response causes tiny lumps of cells to form in the
body's organs, including the heart.
- Amyloidosis (AM-i-loy-DO-sis). This is a disease
in which abnormal proteins build up in the body's organs, including the
heart.
- Connective tissue disorders.
Arrhythmogenic Right Ventricular Dysplasia
Researchers think that arrhythmogenic right
ventricular dysplasia is an inherited disease.
Who Is At Risk for Cardiomyopathy?
People of all ages can have cardiomyopathy. However,
certain types of the disease are more common in certain groups.
Dilated cardiomyopathy is more common in African
Americans than in Whites. This type of the disease also is more common in men
than women.
Teens and young adults are more likely than older
people to have arrhythmogenic right ventricular dysplasia, although it's rare
in both groups.
Major Risk Factors
Certain diseases, conditions, or factors can raise
your risk for cardiomyopathy. Major risk factors include:
- A family history of cardiomyopathy,
heart
failure, or
sudden
cardiac arrest (SCA)
- A disease or condition that can lead to
cardiomyopathy, such as
coronary
artery disease,
heart
attack, or a viral infection that inflames the heart muscle
- Diabetes, other metabolic diseases, or severe
obesity
- Diseases that can damage the heart, such as
hemochromatosis,
sarcoidosis,
or amyloidosis
- Long-term alcoholism
- Long-term
high
blood pressure
Some people who have cardiomyopathy never have signs
or symptoms. That's why it's important to identify people who may be at high
risk for the disease. This can help prevent future problems, such as serious
arrhythmias
or SCA.
What Are the Signs and Symptoms of
Cardiomyopathy?
Some people who have cardiomyopathy never have signs
or symptoms. Others don't have signs or symptoms in the early stages of the
disease.
As cardiomyopathy worsens and the heart weakens,
signs and symptoms of
heart
failure usually occur. These signs and symptoms include:
- Shortness of breath or trouble breathing.
- Fatigue (tiredness).
- Swelling in the ankles, feet, legs, and abdomen.
Rarely, swelling may occur in the veins of your neck.
Other signs and symptoms can include dizziness,
lightheadedness, fainting during physical activity, chest pain,
arrhythmias,
and
heart
murmur (an extra or unusual sound heard during a heartbeat).
How Is Cardiomyopathy Diagnosed?
Your doctor will diagnose cardiomyopathy based on
your medical history, a physical exam, and the results from tests and
procedures.
Specialists Involved
Often, a cardiologist or pediatric cardiologist
diagnoses and treats cardiomyopathy. A cardiologist is a doctor who specializes
in treating heart diseases. A pediatric cardiologist is a doctor who
specializes in treating heart diseases in children.
Medical History
Your doctor will want to learn about your medical
history. He or she will want to know what symptoms you have and how long you've
had them. Your doctor also will want to know whether anyone in your family has
had cardiomyopathy,
heart
failure, or
sudden
cardiac arrest.
Physical Exam
Your doctor will use a stethoscope to listen to your
heart and lungs for sounds that may suggest cardiomyopathy. These sounds may
even suggest a certain type of the disease.
For example, the loudness, timing, and location of a
heart
murmur may suggest hypertrophic obstructive cardiomyopathy. A "crackling"
sound in the lungs may be a sign of heart failure. (This condition often
develops in the later stages of cardiomyopathy.)
Physical signs also help your doctor diagnose
cardiomyopathy. Swelling of the ankles, feet, legs, or abdomen suggests fluid
buildup, a sign of heart failure.
Signs or symptoms of cardiomyopathy may be found
during a routine exam. For example, your doctor may hear a heart murmur or you
may have abnormal test results.
Diagnostic Tests
You may have one or more of the following tests to
diagnose cardiomyopathy.
Blood Tests
During a
blood
test, a small amount of blood is taken from your body. It's usually drawn
from a vein in your arm using a thin needle. The procedure usually is quick and
easy, although it may cause some short-term discomfort.
Blood tests give your doctor information about your
heart and help rule out other conditions.
Chest X Ray
A
chest
x ray takes pictures of the organs and structures inside your chest,
including your heart, lungs, and blood vessels. This test can show whether your
heart is enlarged. A chest x ray also can show whether fluid is building up in
your lungs.
EKG (Electrocardiogram)
An
EKG
is a simple test that records the heart's electrical activity. This test shows
how fast your heart is beating and whether the rhythm of your heartbeat is
steady or irregular. An EKG also records the strength and timing of electrical
signals as they pass through each part of your heart.
This test is used to detect and study many heart
problems, such as
heart
attack,
arrhythmia,
and heart failure. EKG results also can suggest other disorders that affect
heart function.
Echocardiography
Echocardiography
(EK-o-kar-de-OG-ra-fee) is a test that uses sound waves to create a moving
picture of your heart. The picture shows how well your heart is working and its
size and shape.
There are several different types of
echocardiography, including a stress echocardiogram, or "stress echo." This
test is done as part of a
stress
test. A stress echo can show whether you have decreased blood flow to your
heart, a sign of
coronary
artery disease.
Another type of echo is a transesophageal
(tranz-ih-sof-uh-JEE-ul) echo, or TEE. TEE provides a view of the back of the
heart.
For a TEE, a sound wave wand is put on the end of a
special tube. The tube is gently passed down your throat and into your
esophagus (the passage leading from your mouth to your stomach). You will be
given medicine to relax you during this procedure.
Stress Test
Some heart problems are easier to diagnose when your
heart is working hard and beating fast. During stress testing, you exercise (or
are given medicine) to make your heart work hard and beat fast while heart
tests are done.
These tests may include
nuclear
heart scanning, echocardiography, magnetic resonance imaging (MRI), and
positron emission tomography (PET) scanning of the heart.
Diagnostic Procedures
You may have one or more medical procedures to
confirm a diagnosis or if surgery is planned. These procedures may include
cardiac
catheterization (KATH-e-ter-i-ZA-shun),
coronary
angiography (an-jee-OG-ra-fee), or myocardial (mi-o-KAR-de-al) biopsy.
Cardiac Catheterization
This procedure checks the pressure and blood flow in
your heart's chambers. The procedure also allows your doctor to collect blood
samples and look at your heart's arteries using x-ray imaging.
During cardiac catheterization, a long, thin,
flexible tube called a catheter is put into a blood vessel in your arm, groin
(upper thigh), or neck and threaded to your heart. This allows your doctor to
study the inside of your arteries to look for blockages.
Coronary Angiography
This procedure often is done with cardiac
catheterization. During the procedure, dye that can be seen on an x ray is
injected into your coronary arteries. The dye lets your doctor study the flow
of blood through your heart and blood vessels.
Dye also may be injected into your heart chambers.
This allows your doctor to study the pumping function of your heart.
Myocardial Biopsy
For this procedure, your doctor removes a piece of
your heart muscle. This can be done during cardiac catheterization. The heart
muscle is studied under a microscope to see whether changes in cells have
occurred that may suggest cardiomyopathy.
The biopsy is useful for diagnosing some types of
cardiomyopathy.
Genetic Testing
Some types of cardiomyopathy run in families. Thus,
your doctor may suggest genetic testing to look for the disease in your
parents, brothers and sisters, or other family members.
Genetic testing can show how the disease runs in
families. It also can find out the chances of parents passing the genes for the
disease on to their children.
Genetic testing also may be useful if your doctor
thinks you may have cardiomyopathy, but you don't yet have signs or symptoms.
Your doctor can then start treatment early, when it may be more
effective.
How Is Cardiomyopathy Treated?
Not everyone who has cardiomyopathy needs treatment.
People who have no signs or symptoms may not need treatment. In some cases,
dilated cardiomyopathy that comes on suddenly may even go away on its own.
For other people who have cardiomyopathy, treatment
is needed. Treatment depends on the type of cardiomyopathy you have, how severe
the symptoms and complications are, and your age and overall health.
The main goals of treating cardiomyopathy are
to:
- Manage any conditions that cause or contribute to
the disease
- Control signs and symptoms so that you can live
as normally as possible
- Stop the disease from getting worse
- Reduce complications and the chance of
sudden
cardiac arrest (SCA)
Treatments may include lifestyle changes, medicines,
surgery, implanted devices to correct
arrhythmias,
and a nonsurgical procedure.
Lifestyle Changes
Your doctor may suggest lifestyle changes to manage
a condition that's causing your cardiomyopathy. These changes can help reduce
symptoms.
Healthy Diet and Physical Activity
A healthy diet and physical activity are part of a
healthy lifestyle. A healthy diet includes a variety of fruits, vegetables, and
grains; half of your grains should come from whole-grain products.
Choose foods that are low in saturated fat,
trans fat, and cholesterol. Healthy choices include lean meats,
poultry without skin, fish, beans, and fat-free or low-fat milk and milk
products.
Choose and prepare foods with little sodium (salt).
Too much salt can raise your risk for
high
blood pressure. Recent studies show that following the
Dietary
Approaches to Stop Hypertension (DASH) eating plan can lower blood
pressure.
Choose foods and beverages that are low in added
sugar. If you drink alcoholic beverages, do so in moderation.
Aim for a healthy weight by staying within your
daily calorie needs. Balance the calories you take in with the calories you use
while doing physical activity. Be as physically active as you can.
Some people should get medical advice before
starting or increasing physical activity. For example, talk to your doctor if
you have a chronic (ongoing) health problem, are on medicine, or have symptoms
such as chest pain, shortness of breath, or dizziness. Your doctor can suggest
types and amounts of physical activity that are safe for you.
For more information on following a healthy diet,
see the National Heart, Lung, and Blood Institute's (NHLBI's)
Aim for a
Healthy Weight Web site,
"Your
Guide to a Healthy Heart," and
"Your
Guide to Lowering Your Blood Pressure With DASH." All of these resources
provide general information about healthy eating.
For more information on physical activity, see
NHLBI's
"Your
Guide to Physical Activity and Your Heart."
Your doctor can help you decide what kind of eating
plan and physical activity are right for you.
Other Lifestyle Changes
Your doctor also may recommend other lifestyle
changes, such as:
- Quitting smoking
- Losing excess weight
- Avoiding the use of alcohol and illegal
drugs
- Getting enough sleep and rest
- Reducing stress
- Treating underlying conditions, such as diabetes
and high blood pressure
Medicines
A number of medicines are used to treat
cardiomyopathy. Your doctor may prescribe medicines to:
- Lower your blood pressure. ACE inhibitors,
angiotensin II receptor blockers, beta blockers, and calcium channel blockers
are examples of medicines that lower blood pressure.
- Slow your heart rate. Beta blockers, calcium
channel blockers, and digoxin are examples of medicines that slow the heart
rate. Beta blockers and calcium channel blockers also are used to lower blood
pressure.
- Keep your heart beating with a normal rhythm.
These medicines help prevent arrhythmias.
- Balance electrolytes in your body. Electrolytes
are minerals that help maintain fluid levels and acid-base balance in the body.
They also help muscle and nerve tissues work properly. Abnormal electrolyte
levels may be a sign of dehydration (lack of fluid in your body), heart
failure, high blood pressure, or other disorders. Aldosterone blockers are an
example of a medicine used to balance electrolytes.
- Remove excess fluid and sodium (salt) from your
body. Diuretics, or "water pills," are an example of a medicine that helps
remove excess fluid and sodium from the body.
- Prevent blood clots from forming. Anticoagulants,
or "blood thinners," are an example of a medicine that prevents blood clots.
Blood thinners often are used to prevent blood clots from forming in people who
have dilated cardiomyopathy.
- Reduce inflammation. Corticosteroids are an
example of a medicine used to reduce inflammation.
Surgery
Several different types of surgery are used to treat
cardiomyopathy. These include septal myectomy (mi-EK-to-me), implanted devices
to help the heart work better, and
heart
transplant.
Septal Myectomy
Septal myectomy is
open-heart
surgery. It's used for people who have hypertrophic obstructive
cardiomyopathy and severe symptoms. This surgery generally is used for younger
patients and for people whose medicines aren't working well.
During the surgery, a surgeon removes part of the
thickened septum that's bulging into the left ventricle. This improves blood
flow through the heart and out to the body. The removed tissue doesn't grow
back.
The surgeon also can repair or replace the mitral
valve at the same time (if needed). Septal myectomy often is successful and
allows you to return to a normal life with no symptoms.
Surgically Implanted Devices
Surgeons can place several types of devices in the
heart to help it work better. One example is a
pacemaker.
This is a small device that's placed under the skin of your chest or abdomen to
help control abnormal heart rhythms. The device uses electrical pulses to
prompt the heart to beat at a normal rate.
Sometimes doctors choose to use a biventricular
pacemaker. This device coordinates contractions between the heart's left and
right ventricles.
A left ventricular assist device (LVAD) helps the
heart pump blood to the body. An LVAD can be used as a long-term therapy or as
a short-term treatment for people who are waiting for a heart transplant.
An
implantable cardioverter defibrillator (ICD) helps control life-threatening
arrhythmias, which may lead to SCA. This small device is implanted in the chest
or abdomen and connected to the heart with wires.
If an ICD senses a dangerous change in heart rhythm,
it will send an electric shock to the heart to restore a normal heartbeat.
Heart Transplant
For this surgery, a doctor replaces a person's
diseased heart with a healthy heart from a deceased donor. Heart transplant is
a last resort treatment for people who have end-stage heart failure.
"End-stage" means the condition has become so severe that all treatments, other
than heart transplant, have failed.
Nonsurgical Procedure
Doctors may use a nonsurgical procedure called
alcohol septal ablation to treat cardiomyopathy.
For this procedure, your doctor injects ethanol (a
type of alcohol) through a catheter into the small artery that supplies blood
to the thickened area of heart muscle. The alcohol kills cells, and the
thickened tissue shrinks to a more normal size.
This allows blood to flow freely through the
ventricle, and symptoms improve.
How Can Cardiomyopathy Be Prevented?
You can't prevent inherited types of cardiomyopathy.
However, you can take steps to lower your risk for conditions that may lead to
or complicate cardiomyopathy, such as
coronary
artery disease,
high
blood pressure, and
heart
attack.
Your doctor may advise you to make lifestyle
changes, such as:
- Following a healthy diet and doing physical
activity. (For more information, see
"How
Is Cardiomyopathy Treated?")
- Quitting smoking.
- Avoiding the use of alcohol and illegal
drugs.
Your cardiomyopathy may be due to an underlying
disease or condition. If you treat that condition early enough, you may be able
to prevent cardiomyopathy complications. For example, to control high blood
pressure,
high
blood cholesterol, and diabetes:
- Get regular checkups with your doctor.
- Follow your doctor's advice about lifestyle
changes.
- Take all of your medicines as your doctor
prescribes.
It may be possible to prevent
sudden
cardiac arrest if doctors can identify a person at high risk for this
condition and treat him or her with an
implantable
cardioverter defibrillator.
Living With Cardiomyopathy
Some people who have cardiomyopathyespecially
those who have the hypertrophic typemay live a healthy life with few
problems or symptoms. Others may have serious symptoms and complications.
If you have cardiomyopathy, you can take steps to
take care of your heart. Lifestyle changes and ongoing care can help you manage
your disease.
Lifestyle Changes
A healthy diet and physical activity are part of a
healthy lifestyle. Your doctor can help you decide what kind of eating plan is
right for you.
Talk with your doctor about the amounts and types of
fluids that are safe and healthy for you. Your doctor also may suggest a diet
that's low in sodium (salt) and fat. (For more information about healthy diet,
see
"How
Is Cardiomyopathy Treated?")
Talk with your doctor about the amount and type of
physical activity that's right for you. People who have hypertrophic
cardiomyopathy shouldn't do vigorous exercise. However, moderate exercise, such
as walking, often is a good idea.
Your doctor also may recommend other lifestyle
changes, such as:
- Quitting smoking
- Losing excess weight
- Avoiding the use of alcohol and illegal
drugs
- Getting enough sleep and rest
- Reducing stress
Ongoing Care
If you have cardiomyopathy, it's important to get
ongoing care. Call your doctor if you notice new or worse symptoms, such as
swelling in your ankles, feet, legs, or abdomen. These symptoms may be a sign
that the disease is getting worse.
You also should:
- Take all of your medicines as your doctor
prescribes.
- Make all of the lifestyle changes that your
doctor recommends.
- Make sure you go to all of your medical
checkups.
- Follow your treatments for any underlying
conditions, such as diabetes and
high
blood pressure.
Cardiomyopathy often runs in families. Your doctor
may suggest that your parents, brothers and sisters, and children get checked
to see whether they have the disease.
Key Points
- Cardiomyopathy refers to diseases of the heart
muscle. These diseases have a variety of causes, symptoms, and treatments.
- In cardiomyopathy, the heart muscle becomes
enlarged, thick, or rigid. In rare cases, the muscle tissue in the heart is
replaced with scar tissue.
- As cardiomyopathy worsens, the heart muscle
becomes weaker. It's less able to pump blood through the body and maintain a
normal electrical rhythm. This can lead to
heart
failure or
arrhythmia.
The weakening of the heart also can cause other severe complications, such as
heart
valve problems.
- The four main types of cardiomyopathy are
dilated, hypertrophic, restrictive, and arrhythmogenic right ventricular
dysplasia (ARVD). The different types of the disease have different causes,
signs and symptoms, and outcomes.
- Cardiomyopathy can be acquired or inherited. Many
times, the cause of the disease isn't known. This is often the case when the
disease occurs in children.
- People of all ages can have cardiomyopathy.
However, certain types of the disease are more common in certain groups.
Dilated cardiomyopathy is more common in African Americans than in Whites. This
type of the disease also is more common in men than women. Teens and young
adults are more likely than older people to have ARVD, although it's rare in
both groups.
- Some people who have cardiomyopathy never have
signs or symptoms. Others don't have signs or symptoms in the early stages of
the disease. As cardiomyopathy worsens, signs and symptoms of heart failure
usually occur.
- Your doctor will diagnose cardiomyopathy based on
your medical history, a physical exam, and the results from tests and
procedures.
- Not everyone who has cardiomyopathy needs
treatment. People who have no signs or symptoms may not need treatment. For
other people who have cardiomyopathy, treatment is needed.
- Treatment depends on the type of cardiomyopathy
you have, how severe the symptoms and complications are, and your age and
overall health. Treatments may include lifestyle changes, medicines, surgery,
implanted devices to correct arrhythmias, and a nonsurgical procedure.
- You can't prevent inherited types of
cardiomyopathy. However, you can take steps to lower your risk for conditions
that may lead to cardiomyopathy. Make lifestyle changes as your doctor advises,
get ongoing care, and take all of your medicines as your doctor
prescribes.
Links to Other Information About
Cardiomyopathy
NHLBI Resources
Non-NHLBI Resources
Clinical Trials
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