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About this Site

Principal Research Directors:

Victoria Pemberton, RNC, MS, CCRC
Clinical Trials Specialist
National Heart, Lung, and Blood Institute, NIH
Bethesda, MD

Gail Pearson, MD, ScD
Pediatric Cardiologist
National Heart, Lung, and Blood Institute, NIH
Bethesda, MD

Medical Experts:

Renee Jenkins, MD, FAAP
Pediatrician
President, American Academy of Pediatrics, 2007-2008
Professor, Department of Pediatrics and Child Health
Howard University College of Medicine
Washington, DC

David Wendler, PhD
Head, Unit on Vulnerable Populations
Department of Bioethics
NIH Clinical Center
Bethesda, MD

William Rodriguez, MD, PhD
Science Director, Office of Pediatric Therapeutics, FDA
Professor Emeritus of Pediatrics
Children's National Medical Center, George Washington University School of Medicine
Washington, DC

Tasmeen Singh MPH, NREMT-P
Director, EMSC National Resource Center
Child Health Advocacy Institute
Children's National Medical Center
Washington, DC

Joseph Wright, MD, MPH
Professor and Vice Chair, Department of Pediatrics
Executive Director, Child Health Advocacy Institute
Children's National Medical Center
Washington, DC

Alexander Kon, MD, FAAP, FCCM
Associate Professor
Pediatrics and Bioethics
University of California, Davis, School of Medicine
Sacramento, CA

Special thanks to:

  • The Children's Inn at NIH, Bethesda, Maryland
  • Children's National Medical Center, Washington, DC
  • Howard University Hospital, Washington, DC
  • National Institutes of Health Clinical Center, Bethesda, Maryland
  • NHLBI Health Disparities Research Interest Collaborative, Bethesda, Maryland
  • American Academy of Pediatrics
  • Rosalind Korsin, RN
  • Jennie Lucca, MSW
  • Meredith Daly
  • Dr. Scott Miller
  • Dr. Mitchell Cairo
  • Dr. Frederick Kaskel
  • Dr. Howard Trachtman

This site was developed in collaboration with:

This site was also made possible by generous support from:

We would like thank the families, who graciously gave of their time, to share their stories for this site.

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