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Dr. Shurin participates in White House sickle cell disease roundtable
Office of the Director - August 12, 2011
The White House and the U.S. Department of Health and Human Services (HHS) recently convened about 100 faith and community leaders, sickle cell disease patients and family members, and experts in the field to discuss raising awareness and educating communities about sickle cell disease, a serious blood disorder that affects between 70,000 and 100,000 Americans.
During the meeting, NHLBI Acting Director Dr. Susan Shurin provided an overview of sickle cell disease, highlighting the history of the disease and how far the research has come in helping to treat and manage it. Dr. Shurin added that there is still more to be done and that the NIH – in collaboration with HHS, researchers, and community leaders – is dedicated to further reducing the burden of disease in adults and children.
HHS attendees further underscored the importance of making sickle cell disease a priority by discussing the HHS' Sickle Cell Disease Initiative, which will focus on better coordination and collaboration to improve sickle cell disease care.
Read more:
- White House blog post about the roundtable, written by Acacia Bamberg Salatti, deputy director of the Center for Faith-based and Neighborhood Partnerships (The Partnership Center) at HHS.
- NHLBI sickle cell disease information center
- HHS Announces Sickle Cell Disease Initiative
- Article Highlight: Sickle Cell Disease in The New York Times
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