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Children and Clinical Studies video screened at Genetic Alliance meeting

Dr. Susan Shurin - June 28, 2011

 

Children have often had to accept medicines and treatments based on what is known to work in adults. The National Heart, Lung, and Blood Institute is eager to improve the evidence to ensure the safety and efficacy of therapies for all children. We have provided this video to help families and investigators make wise decisions. Learn more at http://www.nhlbi.nih.gov/childrenandclinicalstudies/index.php

This video was made possible by grants from the NHLBI, the National Marfan Foundation, and the NIH's National Center for Research Resources.



Congratulations to Vicki Pemberton and team, whose video about children in research studies from the NHLBI-hosted Children and Clinical Studies Web campaign was one of six short films selected to be shown at the annual Genetic Alliance conference. It's a real pleasure to see this project continuing to be recognized.

Pemberton noted about her experience at the screening:

One film that I had seen before was "Me and Antoine B.," referring to Antoine B. Marfan. It highlights one young man's experience living with Marfan syndrome. He interviews his family members and also his pediatrician, Dr. Alan Guttmacher, who is now the director of NICHD, while relating information about his condition, his physical restrictions, and how he overcame those. Kevin is currently in film school and is truly an inspiration.

There is an excerpt from a full-length film, “One Little Difference.” The story is about Camp Crescent Moon, a camp for children with sickle cell disease, and the making of music videos by the campers.

One film, “Epigenetic Landscapes,” presents information for science students in a very basic, easy-to-understand, and amusing way.

I thought the film "If I Can't Dance," about the benefits of dance classes for people with Parkinson's Disease here in the D.C. area, was particularly inspiring.

Synopses of the screened films can be found at http://www.geneticalliance.org/genescreen2011



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